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BELINDA>Re: Another vision question./ &

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,

So what does the medical profession think, that you always talk like

that? Have you been asked yet if you have a drinking problem?

>grinning< Oh how I love being asked that question.

Belinda

> > > > > > > ,

> > > > > > > I have the same vision problems. I guess

> > it is

> > > > > > caused by what your

> > > > > > > doctor said. Our brains are trying to

> > > > interpret

> > > > > > what we see. I have

> > > > > > > looked at something far off but not so far

> > off

> > > > I

> > > > > > shouldn't know

> > > > > > what

> > > > > > > it is and for the life of me it may take

> > me a

> > > > > > while to figure out

> > > > > > > what I am looking at. I then ask myself

> > how in

> > > > the

> > > > > > world did you

> > > > > > not

> > > > > > > know what that was when you first looked

> > at

> > > > it? I

> > > > > > have even asked

> > > > > > > someone if there was someone around me

> > what is

> > > > it

> > > > > > that I am seeing.

> > > > > > I

> > > > > > > don't do that often because I think I

> > freak

> > > > them

> > > > > > out. I have seen

> >

> === message truncated ===

>

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> - Get the best out of your PC!

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Belinda,

Here in the land of Oz, there is a popular saying

which some people have printed on T-Shirts. " I don't

have a drinking problem..I drink..I fall down..no

problem. " Anyway I go to see a new neuro on 21st

September, so we'll see what he thinks. If I get no

answers there, I'll just motor on until something

occurs significantly enough for anyone to do

something.

One thing of interest for people on the list generally

is that I have been diagnosed and have a CPAP device

for Obstructive Sleep Apnea. I asked my new General

Practitioner about the possibility of tablets to deal

with my chronic insomnia. He told me straight out that

he would not prescribe anything like that for me with

my OSA condition, because I simply might never wake up

again. It frightened the hell out of me I must say. So

if this applies to anyone else, you may want to check

on it with your own doctor.

Regards

--- belnorest Belindastime@...> wrote: > ,

> So what does the medical profession think, that you

> always talk like

> that? Have you been asked yet if you have a drinking

> problem?

> >grinning< Oh how I love being asked that question.

> Belinda

>

>

>

>

>

> > HI

> > > > > BELINDA.

> > > > > > >

> > > > > > > YES. I HAVE SOME PROBLEMS WITH SPEECH.

> > > > > > >

> > > > > > > NEVER USED TO HAVE PROBLEMS - WITH

> SPEECH

> > > > > ANYWAY.

> > > > > > >

> > > > > > > YET NOW, OFTEN - I EITHER HESITATE -

> HAVING

> > > A

> > > > > HARD

> > > > > > > TIME COMING UP

> > > > > > > WITH THE WORDS, OR THEY JUST DON'T COME

> OUR

> > > > > RIGHT.

> > > > > > > AND I DON'T MEAN

> > > > > > > THAT I OFFEND OTHERS - THEY JUST FLAT

> COME

> > > OUT

> > > > > > > WRONG, SO I HAVE TO

> > > > > > > REPEAT MYSELF... FOR THAT MATTER -

> > > SOMETIMES

> > > > > THEY

> > > > > > > JUST DON'T COME

> > > > > > > OUT AT ALL. OF COURSE... I FIND MYSELF

> > > > > STUTTERING

> > > > > > > SOME NOW TOO.

> > > > > > > WEIRD STUFF. TRULY WEIRD.

> > > > > > >

> > > > > > > NO REAL SLURRED SPEECH. WELL, I TAKE

> THAT

> > > > > BACK...

> > > > > > > THERE HAVE BEEN

> > > > > > > TIMES OF THAT IN RECENT WEEKS/MONTHS AS

> > > WELL.

> > > > > OF

> > > > > > > COURSE - WANT A

> > > > > > > REAL FUNNY?

>

=== message truncated ===

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Hi all,

You need to remember that all doctors become somewhat specialized according

to the problems they see every day. Therefore an ER doctor becomes acustomed

to trauma; a family doctor in my area becomes acustomed to sinus infections,

a pediatrics specialist becomes used to childrens problems, etc.

That is why you need to learn to tell the ER doctor - "the patient has orthostatic

hypotension and autonomic failure" (if the patient does have the BP problem).

That alerts the doctor that they are not dealing with trauma, as they tend

to want a patient to lay flat.

As far as dealing with a diagnoses, you need to seek out a specialist in

movement disorders and/or autonomic failure. This is usually a movement

disorder neurologist (Parkinson's); a cardiologist (for the BP problem) OR

a geriatrics specialist as they deal with this type of problem in nursing

homes. Whoever you get should tell you to flop your hand over and back several

times to test your ability there. Watch how you walk from behind you. Probably

tell you to touch their finger then touch your nose several time while moving

their finger around and do other reflex tests. These simple tests can tell

them that you are not drunk and have a neurological problem. However, some

recreational drugs can give you these problems also and they see more of

that than MSA or other brain disorders. So in part that is a problem of

society rather than the actual doctor who is drawing on their experience.

Remember if you take your car into a mechanic and tell them your engine is

running rough, they will probably ask you if it does it more on wet mornings

- because ignition wires and sparkplugs tend to short out if they are dirty

on wet days. Their questions and your truthful answers help them make a

diagnoses. Help them and don't worry about about the questions they ask.

Take care, Bill Werre

================================

belnorest wrote:

,So what does the medical profession think, that you always talk like that? Have you been asked yet if you have a drinking problem?

grinning< Oh how I love being asked that question.

Belinda

,I have the same vision problems. I guess

it is

caused by what your

doctor said. Our brains are trying to

interpret

what we see. I have

looked at something far off but not so far

off

I

shouldn't knowwhat

it is and for the life of me it may take

me a

while to figure out

what I am looking at. I then ask myself

how in

the

world did younot

know what that was when you first looked

at

it? I

have even asked

someone if there was someone around me

what is

it

that I am seeing.I

don't do that often because I think I

freak

them

out. I have seen

=== message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC!

If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

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Mike,

Ask your doctor about using a medicine that has a side effect of sleepiness.

For instance Charlotte used an antidepressant called trazadone at bedtime

which helped her sleep as a side effect. Others here have used benedryl

(an antihistamine). Maybe something like that could help you sleep.

Also be aware that some meds you may take for MSA have side effects which

tend to keep you awake and should be taken early in the day (like florinef).

Ask your doctor if you should change your pill schedule to help you sleep.

Take care, Bill Werre

=========================

Mike the Koala wrote:

Belinda,Here in the land of Oz, there is a popular sayingwhich some people have printed on T-Shirts. "I don'thave a drinking problem..I drink..I fall down..noproblem." Anyway I go to see a new neuro on 21stSeptember, so we'll see what he thinks. If I get noanswers there, I'll just motor on until somethingoccurs significantly enough for anyone to dosomething.One thing of interest for people on the list generallyis that I have been diagnosed and have a CPAP devicefor Obstructive Sleep Apnea. I asked my new GeneralPractitioner about the possibility of tablets to dealwith my chronic insomnia. He told me straight out thathe would not prescribe anything like that for me withmy OSA condition, because I simply might never wake upagain. It frightened the hell out of me I must say. Soif this applies to anyone else, you may want to checkon it with your own doctor.Regards --

- belnorest wrote: > ,

So what does the medical profession think, that youalways talk like that? Have you been asked yet if you have a drinkingproblem?

grinning< Oh how I love being asked that question.

Belinda > HI

BELINDA.

YES. I HAVE SOME PROBLEMS WITH SPEECH.NEVER USED TO HAVE PROBLEMS - WITH

SPEECH

ANYWAY.

YET NOW, OFTEN - I EITHER HESITATE -

HAVING

A

HARD

TIME COMING UPWITH THE WORDS, OR THEY JUST DON'T COME

OUR

RIGHT.

AND I DON'T MEANTHAT I OFFEND OTHERS - THEY JUST FLAT

COME

OUT

WRONG, SO I HAVE TOREPEAT MYSELF... FOR THAT MATTER -

SOMETIMES

THEY

JUST DON'T COMEOUT AT ALL. OF COURSE... I FIND MYSELF

STUTTERING

SOME NOW TOO.WEIRD STUFF. TRULY WEIRD.NO REAL SLURRED SPEECH. WELL, I TAKE

THAT

BACK...

THERE HAVE BEENTIMES OF THAT IN RECENT WEEKS/MONTHS AS

WELL.

OF

COURSE - WANT AREAL FUNNY?

=== message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC!If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

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Good advice Bill

Dr. Ray

-- Re: BELINDA>Re: Another vision question./ &

Hi all,You need to remember that all doctors become somewhat specialized according to the problems they see every day. Therefore an ER doctor becomes acustomed to trauma; a family doctor in my area becomes acustomed to sinus infections, a pediatrics specialist becomes used to childrens problems, etc.That is why you need to learn to tell the ER doctor - "the patient has orthostatic hypotension and autonomic failure" (if the patient does have the BP problem). That alerts the doctor that they are not dealing with trauma, as they tend to want a patient to lay flat.As far as dealing with a diagnoses, you need to seek out a specialist in movement disorders and/or autonomic failure. This is usually a movement disorder neurologist (Parkinson's); a cardiologist (for the BP problem) OR a geriatrics specialist as they deal with this type of problem in nursing homes. Whoever you get should tell you to flop your hand over and back several times to test your ability there. Watch how you walk from behind you. Probably tell you to touch their finger then touch your nose several time while moving their finger around and do other reflex tests. These simple tests can tell them that you are not drunk and have a neurological problem. However, some recreational drugs can give you these problems also and they see more of that than MSA or other brain disorders. So in part that is a problem of society rather than the actual doctor who is drawing on their experience.Remember if you take your car into a mechanic and tell them your engine is running rough, they will probably ask you if it does it more on wet mornings - because ignition wires and sparkplugs tend to short out if they are dirty on wet days. Their questions and your truthful answers help them make a diagnoses. Help them and don't worry about about the questions they ask.Take care, Bill Werre================================belnorest wrote:

,So what does the medical profession think, that you always talk like that? Have you been asked yet if you have a drinking problem?

grinning< Oh how I love being asked that question. Belinda

,I have the same vision problems. I guessit is

caused by what your

doctor said. Our brains are trying tointerpret

what we see. I have

looked at something far off but not so faroff

I

shouldn't knowwhat

it is and for the life of me it may takeme a

while to figure out

what I am looking at. I then ask myselfhow in

the

world did younot

know what that was when you first lookedat

it? I

have even asked

someone if there was someone around mewhat is

it

that I am seeing.I

don't do that often because I think Ifreak

them

out. I have seen=== message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC!If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe

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