Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 , So what does the medical profession think, that you always talk like that? Have you been asked yet if you have a drinking problem? >grinning< Oh how I love being asked that question. Belinda > > > > > > > , > > > > > > > I have the same vision problems. I guess > > it is > > > > > > caused by what your > > > > > > > doctor said. Our brains are trying to > > > > interpret > > > > > > what we see. I have > > > > > > > looked at something far off but not so far > > off > > > > I > > > > > > shouldn't know > > > > > > what > > > > > > > it is and for the life of me it may take > > me a > > > > > > while to figure out > > > > > > > what I am looking at. I then ask myself > > how in > > > > the > > > > > > world did you > > > > > > not > > > > > > > know what that was when you first looked > > at > > > > it? I > > > > > > have even asked > > > > > > > someone if there was someone around me > > what is > > > > it > > > > > > that I am seeing. > > > > > > I > > > > > > > don't do that often because I think I > > freak > > > > them > > > > > > out. I have seen > > > === message truncated === > > http://digital.yahoo.com.au - Yahoo! Digital How To > - Get the best out of your PC! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Belinda, Here in the land of Oz, there is a popular saying which some people have printed on T-Shirts. " I don't have a drinking problem..I drink..I fall down..no problem. " Anyway I go to see a new neuro on 21st September, so we'll see what he thinks. If I get no answers there, I'll just motor on until something occurs significantly enough for anyone to do something. One thing of interest for people on the list generally is that I have been diagnosed and have a CPAP device for Obstructive Sleep Apnea. I asked my new General Practitioner about the possibility of tablets to deal with my chronic insomnia. He told me straight out that he would not prescribe anything like that for me with my OSA condition, because I simply might never wake up again. It frightened the hell out of me I must say. So if this applies to anyone else, you may want to check on it with your own doctor. Regards --- belnorest Belindastime@...> wrote: > , > So what does the medical profession think, that you > always talk like > that? Have you been asked yet if you have a drinking > problem? > >grinning< Oh how I love being asked that question. > Belinda > > > > > > > HI > > > > > BELINDA. > > > > > > > > > > > > > > YES. I HAVE SOME PROBLEMS WITH SPEECH. > > > > > > > > > > > > > > NEVER USED TO HAVE PROBLEMS - WITH > SPEECH > > > > > ANYWAY. > > > > > > > > > > > > > > YET NOW, OFTEN - I EITHER HESITATE - > HAVING > > > A > > > > > HARD > > > > > > > TIME COMING UP > > > > > > > WITH THE WORDS, OR THEY JUST DON'T COME > OUR > > > > > RIGHT. > > > > > > > AND I DON'T MEAN > > > > > > > THAT I OFFEND OTHERS - THEY JUST FLAT > COME > > > OUT > > > > > > > WRONG, SO I HAVE TO > > > > > > > REPEAT MYSELF... FOR THAT MATTER - > > > SOMETIMES > > > > > THEY > > > > > > > JUST DON'T COME > > > > > > > OUT AT ALL. OF COURSE... I FIND MYSELF > > > > > STUTTERING > > > > > > > SOME NOW TOO. > > > > > > > WEIRD STUFF. TRULY WEIRD. > > > > > > > > > > > > > > NO REAL SLURRED SPEECH. WELL, I TAKE > THAT > > > > > BACK... > > > > > > > THERE HAVE BEEN > > > > > > > TIMES OF THAT IN RECENT WEEKS/MONTHS AS > > > WELL. > > > > > OF > > > > > > > COURSE - WANT A > > > > > > > REAL FUNNY? > === message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To - Get the best out of your PC! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Hi all, You need to remember that all doctors become somewhat specialized according to the problems they see every day. Therefore an ER doctor becomes acustomed to trauma; a family doctor in my area becomes acustomed to sinus infections, a pediatrics specialist becomes used to childrens problems, etc. That is why you need to learn to tell the ER doctor - "the patient has orthostatic hypotension and autonomic failure" (if the patient does have the BP problem). That alerts the doctor that they are not dealing with trauma, as they tend to want a patient to lay flat. As far as dealing with a diagnoses, you need to seek out a specialist in movement disorders and/or autonomic failure. This is usually a movement disorder neurologist (Parkinson's); a cardiologist (for the BP problem) OR a geriatrics specialist as they deal with this type of problem in nursing homes. Whoever you get should tell you to flop your hand over and back several times to test your ability there. Watch how you walk from behind you. Probably tell you to touch their finger then touch your nose several time while moving their finger around and do other reflex tests. These simple tests can tell them that you are not drunk and have a neurological problem. However, some recreational drugs can give you these problems also and they see more of that than MSA or other brain disorders. So in part that is a problem of society rather than the actual doctor who is drawing on their experience. Remember if you take your car into a mechanic and tell them your engine is running rough, they will probably ask you if it does it more on wet mornings - because ignition wires and sparkplugs tend to short out if they are dirty on wet days. Their questions and your truthful answers help them make a diagnoses. Help them and don't worry about about the questions they ask. Take care, Bill Werre ================================ belnorest wrote: ,So what does the medical profession think, that you always talk like that? Have you been asked yet if you have a drinking problem? grinning< Oh how I love being asked that question. Belinda ,I have the same vision problems. I guess it is caused by what your doctor said. Our brains are trying to interpret what we see. I have looked at something far off but not so far off I shouldn't knowwhat it is and for the life of me it may take me a while to figure out what I am looking at. I then ask myself how in the world did younot know what that was when you first looked at it? I have even asked someone if there was someone around me what is it that I am seeing.I don't do that often because I think I freak them out. I have seen === message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC! If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Mike, Ask your doctor about using a medicine that has a side effect of sleepiness. For instance Charlotte used an antidepressant called trazadone at bedtime which helped her sleep as a side effect. Others here have used benedryl (an antihistamine). Maybe something like that could help you sleep. Also be aware that some meds you may take for MSA have side effects which tend to keep you awake and should be taken early in the day (like florinef). Ask your doctor if you should change your pill schedule to help you sleep. Take care, Bill Werre ========================= Mike the Koala wrote: Belinda,Here in the land of Oz, there is a popular sayingwhich some people have printed on T-Shirts. "I don'thave a drinking problem..I drink..I fall down..noproblem." Anyway I go to see a new neuro on 21stSeptember, so we'll see what he thinks. If I get noanswers there, I'll just motor on until somethingoccurs significantly enough for anyone to dosomething.One thing of interest for people on the list generallyis that I have been diagnosed and have a CPAP devicefor Obstructive Sleep Apnea. I asked my new GeneralPractitioner about the possibility of tablets to dealwith my chronic insomnia. He told me straight out thathe would not prescribe anything like that for me withmy OSA condition, because I simply might never wake upagain. It frightened the hell out of me I must say. Soif this applies to anyone else, you may want to checkon it with your own doctor.Regards -- - belnorest wrote: > , So what does the medical profession think, that youalways talk like that? Have you been asked yet if you have a drinkingproblem? grinning< Oh how I love being asked that question. Belinda > HI BELINDA. YES. I HAVE SOME PROBLEMS WITH SPEECH.NEVER USED TO HAVE PROBLEMS - WITH SPEECH ANYWAY. YET NOW, OFTEN - I EITHER HESITATE - HAVING A HARD TIME COMING UPWITH THE WORDS, OR THEY JUST DON'T COME OUR RIGHT. AND I DON'T MEANTHAT I OFFEND OTHERS - THEY JUST FLAT COME OUT WRONG, SO I HAVE TOREPEAT MYSELF... FOR THAT MATTER - SOMETIMES THEY JUST DON'T COMEOUT AT ALL. OF COURSE... I FIND MYSELF STUTTERING SOME NOW TOO.WEIRD STUFF. TRULY WEIRD.NO REAL SLURRED SPEECH. WELL, I TAKE THAT BACK... THERE HAVE BEENTIMES OF THAT IN RECENT WEEKS/MONTHS AS WELL. OF COURSE - WANT AREAL FUNNY? === message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC!If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Good advice Bill Dr. Ray -- Re: BELINDA>Re: Another vision question./ & Hi all,You need to remember that all doctors become somewhat specialized according to the problems they see every day. Therefore an ER doctor becomes acustomed to trauma; a family doctor in my area becomes acustomed to sinus infections, a pediatrics specialist becomes used to childrens problems, etc.That is why you need to learn to tell the ER doctor - "the patient has orthostatic hypotension and autonomic failure" (if the patient does have the BP problem). That alerts the doctor that they are not dealing with trauma, as they tend to want a patient to lay flat.As far as dealing with a diagnoses, you need to seek out a specialist in movement disorders and/or autonomic failure. This is usually a movement disorder neurologist (Parkinson's); a cardiologist (for the BP problem) OR a geriatrics specialist as they deal with this type of problem in nursing homes. Whoever you get should tell you to flop your hand over and back several times to test your ability there. Watch how you walk from behind you. Probably tell you to touch their finger then touch your nose several time while moving their finger around and do other reflex tests. These simple tests can tell them that you are not drunk and have a neurological problem. However, some recreational drugs can give you these problems also and they see more of that than MSA or other brain disorders. So in part that is a problem of society rather than the actual doctor who is drawing on their experience.Remember if you take your car into a mechanic and tell them your engine is running rough, they will probably ask you if it does it more on wet mornings - because ignition wires and sparkplugs tend to short out if they are dirty on wet days. Their questions and your truthful answers help them make a diagnoses. Help them and don't worry about about the questions they ask.Take care, Bill Werre================================belnorest wrote: ,So what does the medical profession think, that you always talk like that? Have you been asked yet if you have a drinking problem? grinning< Oh how I love being asked that question. Belinda ,I have the same vision problems. I guessit is caused by what your doctor said. Our brains are trying tointerpret what we see. I have looked at something far off but not so faroff I shouldn't knowwhat it is and for the life of me it may takeme a while to figure out what I am looking at. I then ask myselfhow in the world did younot know what that was when you first lookedat it? I have even asked someone if there was someone around mewhat is it that I am seeing.I don't do that often because I think Ifreak them out. I have seen=== message truncated === http://digital.yahoo.com.au - Yahoo! Digital How To- Get the best out of your PC!If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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