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Re: loss of voice>Annette

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Annette,

It is so wonderful to hear of the love you both have for each other.

God bless you a million times over. A love like that is what we all

crave for ourselves and I am so happy that you both have it for each

other! Upon reading this all I wanted to do was give you both the

biggest hug. Since I can't do it in person please know I am doing it

through cyber space.

Love and hugs,

Belinda

> > H i, my name is ph and I am Monik'a husband.. Monika was

> diagnosed with

> > SD in April of 2000 , at agee 55. My wife was a pharmaceutical

> representative

> > but inthe past two years has lost ability to walk , has very

> little

> > movement in her arms or legs. We have tried, Sinetmet,

amantidine,

> > selegeline. Mariplex. but done have helped her. Her new

neurologist

> is now

> > trying Requip. Her voice has become a real problem, At first, her

> speech was

> > slurred . She has been to a speech therapist who gave her some

> voice and

> > breathing excercizes but her voice keeps getting weaker, and in a

> few weeks,

> > I'm afraid it will be totally gone. How do I prepare for this? Is

> there any

> > way for her to communicate after her voice is gone.? I can't

> imagine what it

> > must be like for someone not to be able to communicate what their

> feeling or

> > thinking or need. I've been up most nights now worrying about

> this , God

> > bless us all, patients caretakers, families and friends who are

> living in

> > this hell called MSA.

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