RP Foundation and Support Group Reunion

July 30, 2001

I am writing this to update the new members about our RP Foundation.

We have started a RP foundation and are awaiting the Tax Exempt Status from

the IRS. As soon as this is complete, we will be able to go ahead and start

the fundraising and making the brochures to a pass out to the public and the

medical professions.

Our main goal is " To provide support to Relapsing Polychondritis sufferers,

their friends and family members in the form of educational material and

promote awareness by distribution of educational materials to health care

providers. "

Any one wishing to make a contribution may and you may join the foundation

and receive a newsletter for a $15 per year contribution. Of course we will

take any amount that you may wish to offer. LOL

We are all really excited about this Foundation... I really think we can make

a difference and help people get an earlier diagnosis...You can all be in on

this in the beginning.. Let's make it OUR foundation and Make that

difference...The support group is such a big family that has provided for

each other at their time of need... Think what the Foundation can do at a

National Level...

Any one wishing to make a contribution may make their checks or money orders

out to " RP Foundation " and send it to:

RP Foundation

c/o Colloran

Membership Dept

775 Bounty Place

Manteca, CA 95337

In regards to the RP support group (which is separate from the foundation):

We are also planning a reunion on Labor Day weekend of this year in Tulsa, OK

For more information on this, please contact Heidi Main at Heidi@...

Would love to see you all there. Lots of laughs and a time to finally put a

face to the email addy's. Please try to come. Heidi needs to know as soon

as possible so arrangements may be made for the dinner and hotel. Saturday

will be afternoon coffee and cake, dinner that evening and Sunday will be

family picinic. Sounds like a wonderful time.

Please feel free to contact me or Heidi for any information on the foundation

or reunion.

Colloran

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