Fwd: Neurosy

[Guest guest]

Most of you who know me know that I believe that the victims of a

number of neurological diseases basically face the same symptoms and

problems. There is, in reality, little difference between the

diseases for those who have them.

Some diseases have medications that help make the various symptoms

managable. None of the medications delay the progression of the

diseases or offers a cure.

The diseases are often misdiagnosed. Since they are generally

diagnosed by symptom - the doctors search for the best fit of

symptoms and act accordingly.

The European PSP Society recently wrote about this and suggested that

we needed a broader name to call these diseases as a group (for

example " cancer " covers a multitude of different ailments). They

mentioned the word " neurosy " as one suggestion as a name for the

group of neurological diseases - but as they said, any other

agreeable term would be acceptable.

We whole heartedly agree.

If you've visited PSPInformation.com you know we've had to cover more

than PSP in order to provide available information. What is useful

for those with Parkinson's (for example: physical exercises)

would also be very useful for those in the early stages of PSP.

So, the word " neurosy " covers what we are all about better than our

original name of PSPInformation.

That is why we have registered the web address of " neurosy.org " .

We don't quite know what we will do with it eventually. It will begin

as a copy of PSPInformation.com.

The first pages are online now but there are many problems in making

these two sites work together - so give us some time to find and fix

the bugs.

Neurosy.org will give us a wider audience than will be possible with

the name PSPInformation.com and in numbers there is strength. Perhaps

enough strength to persuade the governments, medicine manufacturers

and the medical community that we need and deserve help to tame this

epidemic of neurological diseases that threatens us all.

Ron Ritch

--- End forwarded message ---