Re: Staph infections

[Guest guest]

Dear I had a massive staph infection last September. My PCP sent me

to a dermatologist who did two biopsies which confirmed it was staph. He put

me on Clindamycin as I am allergic to keflex which was his first choice. It

had not improved in a week so he added more prednisone. I was on 20mgms and

he increased it to 60mgm and continued the clindamycin. He did a countdown

on the pred very slowly and I was on the clindamycin for a month. It took 3

months to completely clear up. I had it all over both my legs and arms. It

hurt and itched at the same time. He really didn't know what caused it, but

wondered if my immune system was so suppressed from the pred, methotrexate,

arava, and plaquinil that the staph that normally is present on our skin

somehow got out of control. The other possibility was that since I'm a nurse

and work with patients that I may have contracted it from one of them. He

really doesn't know what caused it for sure. Didn't think it was from the

RP. hope this helps-Sue Park

Re: Staph infections

> Hi everyone... Kathleen Loch called today and needed some help... She has

> been sick and they thought it was strep, but came back as a staph

> infection..... She wanted to know if anyone in the group has had a problem

> with staph infections and are they related to RP? she has a call in to

Dr T

> but would really appreciate hearing from you if you have any

information...

> Please, lets help her out and get her better...

>

> thanks

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Hi everyone... Kathleen Loch called today and needed some help... She has

been sick and they thought it was strep, but came back as a staph

infection..... She wanted to know if anyone in the group has had a problem

with staph infections and are they related to RP? she has a call in to Dr T

but would really appreciate hearing from you if you have any information...

Please, lets help her out and get her better...

thanks

[Guest guest]

Sue, thanks for the info.... It sounds like you were a complet mess. LOL

I'm so glad that your dr was on top of it.. I know that staph can be really

nasty. I will make sure that Kathleen gets your post... Thanks again for

your input..

How are you feeling now... I hope the RP is behaving itself... You really

need to post more.. I miss hearing from you... Hope you are having a good

summer..

hugs

[Guest guest]

Hi ,

Sorry to hear about Kathleen. Hope she gets to feeling better real

fast. Did they find this with a throat culture? If she is on an

immune suppresant that could be a factor. Hope they get her on some

meds that will take care of the infection. She will be in my thoughts

and prayers and keep us posted. Love, Marilyn

Hi everyone... Kathleen Loch called today and needed some help... She

has

> been sick and they thought it was strep, but came back as a staph

> infection..... She wanted to know if anyone in the group has had a

problem

> with staph infections and are they related to RP? she has a call

in to Dr T

> but would really appreciate hearing from you if you have any

information...

> Please, lets help her out and get her better...

>

> thanks

>

[Guest guest]

Dear Sue, its Sue here. Have a question for you. I have had a rash for the last six months, majorily. Went to a dermy and after several ointments, which none helped I insisted on a biopsy. It came back as Perivascular Spongiotic Dermatitis. I still have some of the skin problems. Clearing up finally. Oh, they did a shave biopsy. Now I need to do more research and see if this could be staph. Back in October, before the rash I was very sick (also on Plaquinel which is known to cause skin reactions) and doctors said it was a virus and had to run its course. I do really need a specialist. Does anyone know if there is one around Chicago, as I'm in Wisconsin and can't find one here. I have no health insurance so need to cut to the chase.....Sue Marth

[Guest guest]

Dear Thanks so much for reponding back. You sure have been through

alot too from your posts that I have read. I hope things are going better

for you now. You have been through so much. Let me know how you are doing.

Thank God the staph had cleared up but it was not soon enough. When I had it

last year,it was so bad I couldn't fly back east for my mom's funeral. She

died of Leukemia and she was fighting right to the end but she lost so much

weight and was nothing but a skeleton in the last few months. I'm doing Ok

now just more tired and achey. I've been working more helping out the

internist I normally work for one day a week. He recently had low back

extensive surgery and woke up from the surgery blind. It was and is really

awful. I'm trying to help him as much as I can. I'm on

methotrexate,plaquinil, arava and prednisone as well as prilosec, premarin,

provera ,synthroid, atarax., flexeril, darvocet or tylenol with codeine for

the pain as needed and miacalcin nasal spray. I use an advair inhaler when I

flare and get wheezing, tight chested and loose my voice. I like this new

inhaler because its a combination of serevent and a steroid so I only need

to use one inhaler instead of two. Sorry I went on and on, much too wordy!

More than you needed to know. Thanks though for writing back and caring that

was really sweet of you. Let me know how you are doing, I care. Sue Park

Re: Re: Staph infections

> Sue, thanks for the info.... It sounds like you were a complet mess. LOL

> I'm so glad that your dr was on top of it.. I know that staph can be

really

> nasty. I will make sure that Kathleen gets your post... Thanks again for

> your input..

>

> How are you feeling now... I hope the RP is behaving itself... You really

> need to post more.. I miss hearing from you... Hope you are having a good

> summer..

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Hi,

I don't know very much about staph infections, but I can tell you

about my experience with rashes since moving here. Here I was sooo

excited to move to New Mexico, totally forgetting I am allergic to the

chlorine in the water. I cannot drink it, or wash in the water. I

spent the first couple of months crying on my husband's shoulder

saying I wanted to go back to Bermuda. Then I was on Pred for my eye,

and I really wanted to go home, I had hives and a rash... everywhere..

and I mean everywhere..

To make a long story short, my husbands doctor is really into

homeopathic options, and told me to try MSM (Methylsulfonylmethane)

lotion and see how it works. I could kiss the ground he walks on..

for me it worked wonders.. I ordered it at www.intohealth.com and

within about a week my rash was sooo much better. They also have

the lotion with apple and apricot at another website, I can't

remember it, but I think a search would find it.They also have

capsules you can take as well. The lotion is expensive, so I tend to

only use it when I get the rash or know I have to take Pred.

I hope that helps in anyway.

le