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Howdy Folks !!!!

Its just me the tiered puppy from okie land.

I thought I check and see how you all doing

tonight. I want to say thank you for replying to my earlier post. But I am still waiting on some more answers. Please everyone let me know

as soon as you read this. Yes I am going to be a pest about this. Sorry but I am running low on time. And I sure want to make sure everyone

can and will enjoy the party. Pretty PLEASE !!!!

Or I get 's pointy shoes !!!!!! LOL Well as tiered as I am I would have to give you a rain check for that one right now LOL

Now I would like to say "Hallo to all new members here. " Herzlich Willkommen to the

greatest RP group" . My name is Mrs. Nosey

Also known as Heidi .LOL

It is my Husband that has RP. His name is Don or Mr. Ornery . He had RP for over 7 years now

but was only diag. after two years of Suffern.

Right now he is doing great with it. Even true we are in a stress full time right now here. Thank God the stress has not bought on a Relapse the only thing it has done for him he

lost some weight. LOL I think part of that came from the weather in Florida. Plus we where not eating right. LOL He did not mind that to much.

I was to busy to eat and lost 9 pounds. LOL Now I like to tell you a little about this group. We have a Home Address list with all the e mail addresses on it too and I sure would love to add

you to it. All I would need from you is your full Name ,home address and Phone # ( Yup, we do have phone bandit here LOL ) and your E mail address. In return I would send you a copy of

all the addresses from everyone here. Ok there is a Catch to this. YOU MAY NOT GIVE OUT ANY

INFORMATION TO ANYONE OUT SITE THIS GROUP. IT IS ONLY FOR THIS GROUP USE. !!!!

So please let me know if you also would like to have this. It is so nice to have, hey you never know when someone from this group gives you a call. LOL Also please read my earlier post about our get to gather over labor day week end. Yes this is our very first meeting here in Okla. You still have time to make your planes.

You all are very willkommen to join us in this great advent. Would love to meet you. Ok I shut up for now ,But please tell me your name I need to know I am Nosey !!!!! LOL Remember RP is only a part of you and we love the whole of you and are always willing to help in anyway we know how. Love you all till later.

Mrs. Nosey

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Hello Heidi, I'm new to the group. My name is Ann McClintock , my address is P.O. Box 85, Montville, OH. 44064-0085 , my phone # is (440)968-3968 And I would like to say I love you all. I have gotten so much information in the last couple of days, that it just over whelms me.

Hugs, Ann

it's just me

Howdy Folks !!!!

Its just me the tiered puppy from okie land.

I thought I check and see how you all doing

tonight. I want to say thank you for replying to my earlier post. But I am still waiting on some more answers. Please everyone let me know

as soon as you read this. Yes I am going to be a pest about this. Sorry but I am running low on time. And I sure want to make sure everyone

can and will enjoy the party. Pretty PLEASE !!!!

Or I get 's pointy shoes !!!!!! LOL Well as tiered as I am I would have to give you a rain check for that one right now LOL

Now I would like to say "Hallo to all new members here. " Herzlich Willkommen to the

greatest RP group" . My name is Mrs. Nosey

Also known as Heidi .LOL

It is my Husband that has RP. His name is Don or Mr. Ornery . He had RP for over 7 years now

but was only diag. after two years of Suffern.

Right now he is doing great with it. Even true we are in a stress full time right now here. Thank God the stress has not bought on a Relapse the only thing it has done for him he

lost some weight. LOL I think part of that came from the weather in Florida. Plus we where not eating right. LOL He did not mind that to much.

I was to busy to eat and lost 9 pounds. LOL Now I like to tell you a little about this group. We have a Home Address list with all the e mail addresses on it too and I sure would love to add

you to it. All I would need from you is your full Name ,home address and Phone # ( Yup, we do have phone bandit here LOL ) and your E mail address. In return I would send you a copy of

all the addresses from everyone here. Ok there is a Catch to this. YOU MAY NOT GIVE OUT ANY

INFORMATION TO ANYONE OUT SITE THIS GROUP. IT IS ONLY FOR THIS GROUP USE. !!!!

So please let me know if you also would like to have this. It is so nice to have, hey you never know when someone from this group gives you a call. LOL Also please read my earlier post about our get to gather over labor day week end. Yes this is our very first meeting here in Okla. You still have time to make your planes.

You all are very willkommen to join us in this great advent. Would love to meet you. Ok I shut up for now ,But please tell me your name I need to know I am Nosey !!!!! LOL Remember RP is only a part of you and we love the whole of you and are always willing to help in anyway we know how. Love you all till later.

Mrs. Nosey

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Heidi, Its me again . I don't know how I did it but that certainly isn't my Phone #. (440)968-3976. Sorry about that. With my thyroid level low I do well to remember my name. Ann

it's just me

Howdy Folks !!!!

Its just me the tiered puppy from okie land.

I thought I check and see how you all doing

tonight. I want to say thank you for replying to my earlier post. But I am still waiting on some more answers. Please everyone let me know

as soon as you read this. Yes I am going to be a pest about this. Sorry but I am running low on time. And I sure want to make sure everyone

can and will enjoy the party. Pretty PLEASE !!!!

Or I get 's pointy shoes !!!!!! LOL Well as tiered as I am I would have to give you a rain check for that one right now LOL

Now I would like to say "Hallo to all new members here. " Herzlich Willkommen to the

greatest RP group" . My name is Mrs. Nosey

Also known as Heidi .LOL

It is my Husband that has RP. His name is Don or Mr. Ornery . He had RP for over 7 years now

but was only diag. after two years of Suffern.

Right now he is doing great with it. Even true we are in a stress full time right now here. Thank God the stress has not bought on a Relapse the only thing it has done for him he

lost some weight. LOL I think part of that came from the weather in Florida. Plus we where not eating right. LOL He did not mind that to much.

I was to busy to eat and lost 9 pounds. LOL Now I like to tell you a little about this group. We have a Home Address list with all the e mail addresses on it too and I sure would love to add

you to it. All I would need from you is your full Name ,home address and Phone # ( Yup, we do have phone bandit here LOL ) and your E mail address. In return I would send you a copy of

all the addresses from everyone here. Ok there is a Catch to this. YOU MAY NOT GIVE OUT ANY

INFORMATION TO ANYONE OUT SITE THIS GROUP. IT IS ONLY FOR THIS GROUP USE. !!!!

So please let me know if you also would like to have this. It is so nice to have, hey you never know when someone from this group gives you a call. LOL Also please read my earlier post about our get to gather over labor day week end. Yes this is our very first meeting here in Okla. You still have time to make your planes.

You all are very willkommen to join us in this great advent. Would love to meet you. Ok I shut up for now ,But please tell me your name I need to know I am Nosey !!!!! LOL Remember RP is only a part of you and we love the whole of you and are always willing to help in anyway we know how. Love you all till later.

Mrs. Nosey

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Hallo Ann !!!

" Herzlich Willkommen " to the greatest Rp group. I want to Thank you so much for the information you send. And yes I will send you

a address list. I have to print of some more this evening. Dear Ann I also want to invite you

to come to our Party here in Tulsa, OK. It is

not to late to make the planes. Would love to meet you in person. Everyone here is invited.

So all you new member please think about it. OK I be happy to send the information once

again just in case you mist it. Well got to run will holler again later. Till then be good and take your med. and Vitamins on time. OK

Gentle Hug from Hot Okieland

Heidi

Hello Heidi, I'm new to the group. My name is Ann McClintock , my address is P.O. Box 85, Montville, OH. 44064-0085 , my phone # is (440)968-3968 And I would like to say I love you all. I have gotten so much information in the last couple of days, that it just over whelms me.

Hugs, Ann

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That's Ok Ann we all have a bad day now and then. Now I do would like to have the right Phone # Please !!! LOL

Heidi

Heidi, Its me again . I don't know how I did it but that certainly isn't my Phone #. (440)968-3976. Sorry about that. With my thyroid level low I do well to remember my name. Ann

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Heidi, My REAL phone # is(440)968-3976.My e-mail address is mokie@... Thanks again Ann

Re: it's just me

That's Ok Ann we all have a bad day now and then. Now I do would like to have the right Phone # Please !!! LOL

Heidi

Heidi, Its me again . I don't know how I did it but that certainly isn't my Phone #. (440)968-3976. Sorry about that. With my thyroid level low I do well to remember my name. AnnDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Hello,

Please add me to your list.

Lang

PO Box 684

Plaistow,NH 03865

Langgang@...

I hope everyone has a great trip and maybe I can come to the

next one.

I was also hoping to get any info on rp being hereditary.(sp)

Both my sister and I have it. I have read that there is another set of

sisters and a mother with 3 rp children. Is this true?. I sure would

like to protect furture generations as we all would I am sure.

thanks

Heidi Main wrote:

Howdy

Folks !!!! Its

just me the tiered puppy from okie land.I

thought I check and see how you all doingtonight.

I want to say thank you for replying to my earlier post. But I am still

waiting on some more answers. Please everyone let me knowas

soon as you read this. Yes I am going to be a pest about this. Sorry but

I am running low on time. And I sure want to make sure everyonecan

and will enjoy the party. Pretty PLEASE !!!!Or

I get 's pointy shoes !!!!!! LOL Well as tiered as I am I would have

to give you a rain check for that one right now LOLNow

I would like to say "Hallo

to all new members here. " Herzlich Willkommen to thegreatest

RP group" .

My name is Mrs. NoseyAlso

known as Heidi .LOLIt

is my Husband that has RP. His name is Don or Mr. Ornery . He had RP for

over 7 years nowbut

was only diag. after two years of Suffern.Right

now he is doing great with it. Even true we are in a stress full time right

now here. Thank God the stress has not bought on a Relapse the only thing

it has done for him helost

some weight. LOL I think part of that came from the weather in Florida.

Plus we where not eating right. LOL He did not mind that to much.I

was to busy to eat and lost 9 pounds. LOL Now I like to tell you a little

about this group. We have a Home Address list with all the e mail addresses

on it too and I sure would love to addyou

to it. All I would need from you is your full Name ,home address and Phone

# ( Yup, we do have phone bandit here LOL ) and your E mail address. In

return I would send you a copy ofall

the addresses from everyone here. Ok there is a Catch to this. YOU MAY

NOT GIVE OUT

ANYINFORMATION

TO ANYONE OUT SITE THIS GROUP. IT IS ONLY FOR THIS GROUP USE. !!!!So

please let me know if you also would like to have this. It is so nice to

have, hey you never know when someone from this group gives you a call.

LOL Also please read my earlier post about our get to gather over labor

day week end. Yes this is our very first meeting here in Okla. You still

have time to make your planes.You

all are very willkommen to join us in this great advent. Would love to

meet you. Ok I shut up for now ,But please tell me your name I need to

know I am Nosey !!!!! LOL Remember RP is only a part of you and we love

the whole of you and are always willing to help in anyway we know how.

Love you all till later.Mrs.

Nosey

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT

IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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