New to the group

[Guest guest]

Hello,

My name is le, I am 30yrs old, and was diagnosed with rp about

6 months ago, since I have had symptoms since the age of 13, for me

this was a long time coming, and almost welcome in a way, as I was

tired of being told I was being hormonal! Imagine, you are in the

hospital with swollen, red ears, and you are hormonal!!!

I moved to Albuquerque almost 2 yrs ago, having lived in Bermuda (my

native country), Jamaica and England. I think it took sooo long to be

diagnosed as the doctors in Bermuda did not understand what was going

on and probably wouldn't know what rp is if it bit them.

I have been reading the posts over the last couple of days, and feel

sooo happy that there is finally someone, anyone who understands! I

have been so hesitant about telling anyone, as the first comment I

get is that doesn't sound too bad, and this is even after they have

seen the info I have download off the internet.

I have been so scared the last 2 years, since I moved to albuquerque,

as my symptoms have been so bad, and the doctor said all he will do

is treat me when I get a flare up, and my case seems so mild to him.

It's funny, you just want to slap the doctor when he says that, as he

isn't the one in pain, and it is very irritating to hear him tell you

that your pain and discomfort are mild, especially when they sure

don't feel that way.

I was wondering if anyone gets migraine headaches and then their

vision goes blurry to the point that you can only see light, and not

be able to make out anything else? I should mention that I had my

first eye inflammation about 1 1/2 yrs ago, when I first moved to NM,

and since the doctor didn't know what was going on, amd it took him 6

months to find medication to help, I lost some vision in my right eye.

Thank you

le