Going to Chicago

[Guest guest]

Hi,

Accodrding to Pam's suggestion, I am saying a bit about my visit to the

Chicago Conference.

My husband, Chuck, was diagnosed in 1997 with Pure Autonomic Failure and

in 1998 with MSA, at Mayo's in Rochester. His major problems are fecal

incontinence and constant diarrhea and orthostatic hypotension. In the

last two years he has developed more Parkinson-like symptoms with severe

tremor in left hand, rigidity in walking, softened voice, and a

Parkinson-like facial mask. Chuck is now 70. Chuck was a Trust executive

for most of his career, a type-A personality, and an athlete in his

younger years

We retired to the Galena area in NW Illinois, having raised our children

in Illinois, Chicago area and Springfield. We have three sons and three

grandchildren. We live in a rather remote part of the countryside

overlooking the Mississippi River.

I was an experimental pathologist before retiring, with interests in

retinal diseases and development and later worked with a small group that

designed, made and tested electrical implants, such as the deep brain

stimulator and visual prostheses.

We had planned to travel a lot during retirement, but that has not been

possible, and Chuck will not be able to come to the Conference.

Two of my sons are planning to come to the Conference on Saturday. I will

be there Friday evening and look forward to meeting you all.

Barbara Woodford, Ph.D.

[Guest guest]

Hey Barbara!

Looking forward to meeting you too.

In our case, I'm the " patient " - who tries my wife's patience :-)

Just look for the young one there - as I just turned 40 - and

according to my eldest daughter, since my weight loss I look like a

teenager :-) I think I look more like a starved Nazi WWII prisoner :-

)

My sister lives in Naperville, and my family is basically from up in

your neck of the woods (no pun intended - really... well... maybe a

little :-)

Too bad your hubby can't make it.

I'll also apparently be one of the few patient-types there who will

be walking in on my own power. My OH actually responded to meds, but

other problems have not (and OH is still there at times - which is

why I'll likely have my trusty cane with me).

Catcha in Chicago

> Hi,

>

> Accodrding to Pam's suggestion, I am saying a bit about my visit to

the

> Chicago Conference.

>

> My husband, Chuck, was diagnosed in 1997 with Pure Autonomic

Failure and

> in 1998 with MSA, at Mayo's in Rochester. His major problems are

fecal

> incontinence and constant diarrhea and orthostatic hypotension. In

the

> last two years he has developed more Parkinson-like symptoms with

severe

> tremor in left hand, rigidity in walking, softened voice, and a

> Parkinson-like facial mask. Chuck is now 70. Chuck was a Trust

executive

> for most of his career, a type-A personality, and an athlete in his

> younger years

>

> We retired to the Galena area in NW Illinois, having raised our

children

> in Illinois, Chicago area and Springfield. We have three sons and

three

> grandchildren. We live in a rather remote part of the countryside

> overlooking the Mississippi River.

>

> I was an experimental pathologist before retiring, with interests

in

> retinal diseases and development and later worked with a small

group that

> designed, made and tested electrical implants, such as the deep

brain

> stimulator and visual prostheses.

>

> We had planned to travel a lot during retirement, but that has not

been

> possible, and Chuck will not be able to come to the Conference.

> Two of my sons are planning to come to the Conference on Saturday.

I will

> be there Friday evening and look forward to meeting you all.

>

> Barbara Woodford, Ph.D.