Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie Hache Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 hi connie dawn here my name and address is Dawn Rt 1, Box 44 Flemington, WV 26347 email: dmorgan26347@... JHACHE wrote: Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie HacheDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Hi Connie, I would love a copy le Cellini 4521 Norma Drive NE Albuquerque, NM 87109 Thank you so much le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 Connie, I would like the newsletter. Sandy Catalusci 5685 Hickory Trail North Ridgeville, Ohio 44039 Thank you so much. Sandy ----- Original Message ----- Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie HacheDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 Hi Sandy :-) I'm happy to send it to you and I've been keeping track of all who have expressed interest. I'll be sending them in the next few days. Take care and hugs, Connie H > Connie, > I would like the newsletter. > > Sandy Catalusci > 5685 Hickory Trail > North Ridgeville, Ohio > 44039 > Thank you so much. > > Sandy > > ----- Original Message ----- > Hi Everyone :-) > > In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) > > I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... > > If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. > > Take care, > > Connie Hache > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 Hello Connie, I would like a copy of the news letter. Ann McClintock P.O. Box 85 Montville, Oh. 44064-0085 Thanks so much, Ann Road Back Foundation Newsletter Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie HacheDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 HELLO CONNIE, I WOULD LIKE A COPY OF THE NEWS LETTER, PLEASE FORWARD TO MARIA CENTENO P.O. BOX 1143 ARROYO, PUERTO RICO 00714 THANK ! ISA > >Reply-To: Rpolychondritis >To: Relapsing_Polychondritis > >CC: Rpolychondritis >, OurMyositis > >Subject: Road Back Foundation Newsletter >Date: Fri, 3 Aug 2001 13:56:46 -0700 > >Hi Everyone :-) > >In yesterday's mail I received a newsletter published by The Road Back >Foundation......it is full of information on Dr. Franco, Dr. Trentham >(pictures, too :-) and other articles including Emma's story. Emma was >dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she >delivered a powerful speech to the audience at the RBF fundraiser in Cape >Cod......get your Kleenex :-) > >I called Marge at the Road Back Foundation ( www.roadback.org ) and asked >if I had their permission to copy the newsletter and distribute it to a few >of my 'closest friends.' She called today and gladly gave permission for >me to do so.......... > >If you would like a copy, send me an email with your name and address, and >I'll be glad to get a copy of the newsletter in the mail to you. > >Take care, > >Connie Hache _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 In a message dated 8/3/01 1:54:00 PM Pacific Daylight Time, jhache@... writes: << you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. >> Connie, I would like a copy... Let me know and I will send the postage... Hope all is well with you and your family... I'm doing wonderful so far on the Biaxin.. Thanks for all the little and BIG nudges. LOL Love ya 775 Bounty Place Manteca, CA 95337 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 :-) You were going to get one whether you wanted it or not LOL, no... I just thought you might want one :-) Don't even think about sending $ for postage......its a small contribution I can make. Good to have you back! and that the Biaxin is doing its thing. Hugs, Connie H > Connie, I would like a copy... Let me know and I will send the postage... > Hope all is well with you and your family... I'm doing wonderful so far on > the Biaxin.. Thanks for all the little and BIG nudges. LOL > > Love ya > > 775 Bounty Place > Manteca, CA 95337 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Connie Could you please send me one too! You are such a wealth of information. Don't know what we would do without you! If I can send you money for postage I will! Thanks so much! You already have my address I think. Lots of Love Glenda Road Back Foundation Newsletter Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie Hache DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Dear Connie, I would appreciate it if you would send me a copy of the Road Back Foundation newsletter. My address is Sue Park, 8057 Centrebridge Drive; Longmont,Colorado 80503. It's so nice of you to offer to do this and if you would let me know I would be happy to pay for it. Thanks again. Sue Park Road Back Foundation Newsletter Hi Everyone :-) In yesterday's mail I received a newsletter published by The Road Back Foundation......it is full of information on Dr. Franco, Dr. Trentham (pictures, too :-) and other articles including Emma's story. Emma was dx'ed with JRA at age 11 in 1999. Two years later, at the age of 13, she delivered a powerful speech to the audience at the RBF fundraiser in Cape Cod......get your Kleenex :-) I called Marge at the Road Back Foundation ( www.roadback.org ) and asked if I had their permission to copy the newsletter and distribute it to a few of my 'closest friends.' She called today and gladly gave permission for me to do so.......... If you would like a copy, send me an email with your name and address, and I'll be glad to get a copy of the newsletter in the mail to you. Take care, Connie HacheDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Hi Sue:-) I just sent the batch out today....but have one or two left so I'll be glad to send you one :-) Take care, Connie H -- In Rpolychondritis@y..., " Sue Park " wrote: > Dear Connie, I would appreciate it if you would send me a copy of the Road Back Foundation newsletter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 HELLO CONNIE, I WOULD LIKE A COPY OF THE NEWS LETTER, PLEASE FORWARD TO MARIA CENTENO P.O. BOX 1143 ARROYO, PUERTO RICO 00714 THANK ! ISA Isa, does it need to come to you in Spanish? LU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Ah hem! Lu......it's already been sent, and the only language I do is English :-) hopefully, Isa can get it translated if needed. Take care.....are you being feisty again? Hopefully it means that you're feeling better :-) ~Connie > > HELLO CONNIE, I WOULD LIKE A COPY OF THE NEWS LETTER, PLEASE FORWARD TO > > MARIA > > THANK ! ISA > Isa, does it need to come to you in Spanish? > LU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 HI LU, I WOULD LIKE THE NEWSLETTER IN ENGLISH, IF YOU HAVE IT IN SPANISH I WILL ASK NINFA IF SHE WOULD LIKE ONE, IT WILL BE EASIER FOR HER TO READ......DIOS TE BENDIGA ....ISA >From: Lu1953@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Re: Road Back Foundation Newsletter >Date: Thu, 9 Aug 2001 04:40:47 EDT > >In a message dated 08/04/2001 8:55:14 PM Central Daylight Time, >centenoi14@... writes: > > > > HELLO CONNIE, I WOULD LIKE A COPY OF THE NEWS LETTER, PLEASE FORWARD TO > > MARIA CENTENO P.O. BOX 1143 > > ARROYO, PUERTO RICO 00714 > > THANK ! ISA > > > > > > > >Isa, does it need to come to you in Spanish? >LU _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Connie Thanks alot for sending me a copy of the road back foundation newsletter, I really appreciate it. Can I pay you for it? Thanks again. Sue Park Re: Road Back Foundation Newsletter > Hi Sue:-) > > I just sent the batch out today....but have one or two left so I'll > be glad to send you one :-) > > Take care, > > Connie H > > -- In Rpolychondritis@y..., " Sue Park " wrote: > > Dear Connie, I would appreciate it if you would send me a copy of > the Road Back Foundation newsletter > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 Hi Sue :-) Thanks for your kind offer, but just consider it a donation....and pass it on to someone another time. I just got back from the beach, so I'm way behind in the mails. Hope you are having a great week.....and I know many of you are counting the days to Tulsa! Take care, Connie H. > Connie Thanks alot for sending me a copy of the road back foundation > newsletter, I really appreciate it. Can I pay you for it? Thanks again. Sue > Park Quote Link to comment Share on other sites More sharing options...
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