Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 , My thoughts go out to you. This is truly a devastating disease. I am not trying to take anything away from your thoughts. You certainly may be exactly right. But, my husband takes a large amount of sinement because of his rigidity. The neuro said that we would know when he had to much, because he would think that he was seeing things. That has happened to him twice. Each time, he was ill with digestive problems and had been unable to eat much. Once he was able to eat, he appeared to not have that problem. Just an idea that you might want to ask about. Marilyn in TN > > Reply-To: shydrager > Date: Sun, 4 Sep 2011 18:20:31 -0700 > To: shydrager > > Subject: Many Differences > > As I have been reading the mail as much as possible, I think I have to put > my twocents woth in as to the many differences of this terrible disease. > > Warren was diagnosed with SDS 12/01/99 and progressed fairly rapidly. The > last few months his b/p has been under control with midorine, but the > dementia has grown very rapidly. He also has such tremors that the Dr. put > him on Sinemet. About 2 months ago his tremors grew so badly that they > increased the sinemet dosage which threw him into worse dementia. That with > a UTI had him about " climbing the walls " and being very agressive. They > reduced the sinemet and cured the UTI and hes calmed down. > > His dementia, seeing things that are not there, being afraid, (hears > something n TV about a fire or gunmen) and thinks its all taking place right > here. I've been reading up on Lewy Bodies Dementia and from what I read it > fits his action to a tee. We see his neurologist in a couple weeks and I'm > going to ask him about Aircept. Somedays he's okay and others he sleeps or > is way out of his head. I see him everyday and help him eat. Sometimes he > can feed himself and others he can't move anything, or even open his eyes. > > He can't be up by himself or he falls, tho' he keeps trying first thing in > a.m. Also he doesn't sleep many nights so is exhausted. He recognizes me > most of the time but doesn't know who he is. > > I'm probably saying this badly but wanted to show the newer " members " some > of the things that go on. I do have him in a nursing home as there is no > way I could tend him at home. > > Strong > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 As I have been reading the mail as much as possible, I think I have to put my twocents woth in as to the many differences of this terrible disease. Warren was diagnosed with SDS 12/01/99 and progressed fairly rapidly. The last few months his b/p has been under control with midorine, but the dementia has grown very rapidly. He also has such tremors that the Dr. put him on Sinemet. About 2 months ago his tremors grew so badly that they increased the sinemet dosage which threw him into worse dementia. That with a UTI had him about " climbing the walls " and being very agressive. They reduced the sinemet and cured the UTI and hes calmed down. His dementia, seeing things that are not there, being afraid, (hears something n TV about a fire or gunmen) and thinks its all taking place right here. I've been reading up on Lewy Bodies Dementia and from what I read it fits his action to a tee. We see his neurologist in a couple weeks and I'm going to ask him about Aircept. Somedays he's okay and others he sleeps or is way out of his head. I see him everyday and help him eat. Sometimes he can feed himself and others he can't move anything, or even open his eyes. He can't be up by himself or he falls, tho' he keeps trying first thing in a.m. Also he doesn't sleep many nights so is exhausted. He recognizes me most of the time but doesn't know who he is. I'm probably saying this badly but wanted to show the newer " members " some of the things that go on. I do have him in a nursing home as there is no way I could tend him at home. Strong Quote Link to comment Share on other sites More sharing options...
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