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Liz,

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Oh, you are so lucky not to have to do laundry!! I do pretty good at

keeping up with that, but ironing is a totally different story.

Good to hear from you. How are things going in your life? Are you

still getting the pred. down? I have tried cutting back, but it's

really hard. Think I will wait till the metho is doing it's job

better before I try to cut back anymore. When ever I cut back on the

pred I get these purple blotches on my hands and arms. I thought

that was caused from taking the pred. You'd think I wouldn't get them

cutting back on the stuff.

Hot here this afternoon. I tried doing some more weeding but will

have to wait till it's cool, maybe this evening.

My cats had me up at 2:30 this AM so to me it feels like bedtime now.

Love, Marilyn

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HI, I JUST WANTED TO LET YOU KNOW THAT I TOO GET PURPLE BLOTCHES AND

LEG CRAMPS WHEN I TRY CUTTING DOWN ON MY PRED. OR IF I MISS A DOSE.

.....ISA

>From: godave4@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Liz,

>Date: Sun, 05 Aug 2001 20:40:30 -0000

>

>Oh, you are so lucky not to have to do laundry!! I do pretty good at

>keeping up with that, but ironing is a totally different story.

>

>Good to hear from you. How are things going in your life? Are you

>still getting the pred. down? I have tried cutting back, but it's

>really hard. Think I will wait till the metho is doing it's job

>better before I try to cut back anymore. When ever I cut back on the

>pred I get these purple blotches on my hands and arms. I thought

>that was caused from taking the pred. You'd think I wouldn't get them

>cutting back on the stuff.

>

>Hot here this afternoon. I tried doing some more weeding but will

>have to wait till it's cool, maybe this evening.

>

>My cats had me up at 2:30 this AM so to me it feels like bedtime now.

>Love, Marilyn

>

>

>

>

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--- godave4@... wrote:

> Oh, you are so lucky not to have to do laundry!! I

> do pretty good at

> keeping up with that, but ironing is a totally

> different story.

>

> Good to hear from you. How are things going in your

> life? Are you

> still getting the pred. down? I have tried cutting

> back, but it's

> really hard. Think I will wait till the metho is

> doing it's job

> better before I try to cut back anymore. When ever

> I cut back on the

> pred I get these purple blotches on my hands and

> arms. I thought

> that was caused from taking the pred. You'd think I

> wouldn't get them

> cutting back on the stuff.

>

> Hot here this afternoon. I tried doing some more

> weeding but will

> have to wait till it's cool, maybe this evening.

>

> My cats had me up at 2:30 this AM so to me it feels

> like bedtime now.

> Love, Marilyn

>

> Marilyn, I got off for three whole days!!!! Then my

ear flared, inside and out and I was wheezing and

coughing and my throat got hoarse...so I went back to

4mg per day, which is not too bad. The symptoms got a

lot milder.

I synmpathize about the cats - I was out with the

girls until about three am, then of course the dogs

still need to go and pee at 6.00 am!! Still, we all

went back to sleep again!!

You take care, lots of love, Liz

>

>

>

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