Pam>Re: Post mortem

[Guest guest]

Thanks Pam - for the clarification.

I had reviewed that site before, and think I gave it to my internist -

as a printout. I'll check and see. Doesn't hurt to review it and

print it out again.

> Deborah's doctors have formed that opinion yes, based on all the

evidence

> they have observed in her tests. Changes in opinion on diagnosis

happen all

> the time.

> There have been others in this forum who have had doctors change

their

> diagnosis. I know people who were originally diagnosed with MSA

who were

> later rediagnosed with POTS or PAF for instance... in fact someone

famous

> (ny Cash) was told he had MSA/Shy-Drager several years ago and

later his

> diagnosis was changed to Diabetic Neuropathy. Changes in

diagnosis do

> happen before autopsy based on the collective evidence of clinical

symptoms

> observed and various scans and tests. I doubt any doctor would

only look at

> one test in order to form their opinion on the likely diagnosis of

MSA.

>

> Please read this information at this website and share with your

doctors.

> http://www.emedicine.com/neuro/topic671.htm It does specify the

recommended

> guidelines for diagnosing Multiple System Atrophy. Also note the

section

> called " Workup " which lists all the tests which can aid the doctors

in

> forming their opinion on diagnosis.

>

> Take care,

> Pam

>

>

> Pam>Re: Post mortem

>

>

> > Thanks Pam. I guess :-)

> >

> > I was kinda under the understanding that with what Deborah had

done,

> > they were able to say definitely she did not have MSA. Remain

> > confused. But I'll go ahead and have tests recommended by docs.

> > This round anyway, but if they don't find what they're looking

for, I

> > think this will be the last. (Given your NIH " plan " reference,

> > they've already pretty well narrowed it as much as it can be - all

> > the more true after this next series. I could always have more -

> > like specific genetic studies and all - but... have to wonder at

what

> > point " enough " is enough :-)

> >

> > Thanks again,

> >

> >