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My dad seems to be choking on food and staff at the home

where he is is recommending a feeding tube into his stomach.

This seems drastic, The fear is of aspiration pneumonia... I

would appreciate any advice if anyone has experience with this.

thanks.

Joanne

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Joanne,

Aspiration pneumonia is a real risk with MSA, and you should be aware that

in addition to actually choking, a patient can aspirate silently, without

actually choking. PEG tubes can avoid the problem, but many people are

averse to them. Before any decision is made your father should have a

swallowing study, which is an x-ray done while swallowing various types of

food that have been " marked " with a radio-opaque substance so that they will

show up on an x-ray. This study should be observed by a speech therapist

trained in this area. The results of this will indicate whether he needs a

special diet (perhaps pureed foods, or thickeners added to liquids) or a PEG

tube. Even with a tube it may still be possible to take some things by

mouth.

Hope this helps.

Carol & Rob

Lexington, MA

aspiration pneumonia

> My dad seems to be choking on food and staff at the home

> where he is is recommending a feeding tube into his stomach.

> This seems drastic, The fear is of aspiration pneumonia... I

> would appreciate any advice if anyone has experience with this.

> thanks.

> Joanne

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

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Joanne,

A PEG (feeding tube) is not that drastic. It is a simple operation

which takes about 20 minutes. The tube comes out near the navel and is

easy to care for. My wife had one for the last three years of her life.

She actually got to eat more food after she got it as we could give her

liquids through the tube and they are the hardest thing for most MSA

patients to swallow. She did have to get speech/swallowing therapy to

help her get back speech and swallowing.

Take care, Bill Werre

cyberturtle707 wrote:

>My dad seems to be choking on food and staff at the home

>where he is is recommending a feeding tube into his stomach.

>This seems drastic, The fear is of aspiration pneumonia... I

>would appreciate any advice if anyone has experience with this.

>thanks.

>Joanne

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

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Joanne: My husband had the same trouble with choking/swallowing regular

food. He also had a swallowing test, & they recommended pureed food &

thickened liquid. So far, that is working. It's worth giving it a try.

Regards, jerrie

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My husband is a "silent" aspirator, must have only thickened liquids, but does eat all food by mouth and has liquids by tube - it works well. You must be careful of what a person eats - so many things we wouldn't think of can cause liquid to go down the wrong way - melon (juice goes down throat while person is chewing fruit), fresh lettuce, etc. You need to get a list from the speech pathologist. Cassaroles are good. And small bites are very important. Bob prefers NOT to drink thickened liquids from a "sippy" cup and takes too large of a sip when he uses regular containers, so the tube is really a blessing. I understand the adversity to the idea, but once there (we had no choice) you will find it is extremely helpful in maintainng optimum care of the person. I'm thankful that we have it!

Elaine Grimmesey

The best of luck to you.

Elaine Grimmesey

Insurance Coordinator

Student Health Service

UC, Santa Barbara

grimmesey-e@...

805 893-2086

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