Seeing things and hearing things - any input appreciated.

[Guest guest]

Thanks.

Not sure you were writing about something I'd posted, or someone

else. I can't ever remember what symptoms I post about, and what I

don't :-)

Anyway, for me, the visual hallucinations have been explained as my

brain trying to make some rational sense of the increasing

irregularity of my eyesight.

So... how would they explain the auditory hallucinations? I have no

idea, but I have them too. Used to be just when I was too tired.

Now doesn't seem to matter. But... I don't get them all the time

when tired, or notice them all that often. Just happens. I know the

voices aren't real - not coming from outside. Just as I know the

things I catch out of the corner of my eye crawling on the wall are

not real (after I look and see there is nothing there - nothing more

than a speck or screwhead or something like that - if anything.)

Anyway, thanks for the info on meds and effectiveness.

Anyone else having auditory hallucinations? At least I'm blessed

to " know " that what I hear is not real. Gives little comfort to

someone who's profession is psychology though :-)

As always, thanks for any info.

> I'm a little behind in reading these posting so others may have

responded.

> However I thought I would share some of Peg's experiences with

medicine and

> hallucinations

>

> Peg exerienced seeing things several times some years ago. Peg had

been

> taking more and more sinemet because she could not stand the

shaking of her

> right hand. We were able to cut back on the sinemet to a more

normal dose,

> especially after adding the use of sinemet cr (continuous release).

More

> recently we were able to cut back on sinemet through adding the

medicine

> comtan, a medicine that helps the sinemet work better. Some also

use mirapex

> for the same purpose although it doesn't seem to help Peg.

>

> For over 10 years Peg has regularly taken a 100% carbohydrate drink

for

> breakfast so that there is no protein to limit the effect of the

sinemet at

> the start of the morning. Anecdotal evidence seems to indicate that

it

> helps. Variations of the value of a low protein diet are mention in

the

> literature in various ways. This works for us.

>

> Peg took aricept for about a year and a half and there was a

remarkable

> improvement in her condition for about a year. Then it seemed to

stop

> working (or Peg just got that much worse). Again anecdotal evidence

> indicates that others have had the same experience although some

have gotten

> help from aricept for a much longer time. Peg is using exelon now

rather

> than aricept and with the doctors ok we are trying an increase of

the dose.

> So far there doesn't seem to be much difference.

>

> Another way Peg's current neurologist is trying to help Peg deal

with seeing

> things is through the use of seroquel (100 mg morning and evening).

Peg had

> to work up to that dose over a period of weeks. It seems to be

helping

> although it's hard to tell.

>

> Peg and Jim from Guam

>

>

> *******************

>

> Date: Fri, 06 Sep 2002 14:05:35 -0500

> From: and Marilyn

> Subject: Re: Many Differences

>

> ,

>

> My thoughts go out to you. This is truly a devastating disease.

>

> I am not trying to take anything away from your thoughts. You

certainly may

> be exactly right.

>

> But, my husband takes a large amount of sinement because of his

rigidity.

> The neuro said that we would know when he had to much, because he

would

> think that he was seeing things. That has happened to him twice.

Each

> time, he was ill with digestive problems and had been unable to eat

much.

> Once he was able to eat, he appeared to not have that problem.

>

> Just an idea that you might want to ask about.

>

> Marilyn in TN

>

> > From:

> > Reply-To: shydrager@y...

> > Date: Sun, 4 Sep 2011 18:20:31 -0700

> > To:

> > Subject: Many Differences

> >

> > As I have been reading the mail as much as possible, I think I

have to put

> > my twocents woth in as to the many differences of this terrible

disease.

> >

> > Warren was diagnosed with SDS 12/01/99 and progressed fairly

rapidly. The

> > last few months his b/p has been under control with midorine, but

the

> > dementia has grown very rapidly. He also has such tremors that

the Dr. put

> > him on Sinemet. About 2 months ago his tremors grew so badly

that they

> > increased the sinemet dosage which threw him into worse

dementia. That with

> > a UTI had him about " climbing the walls " and being very

agressive. They

> > reduced the sinemet and cured the UTI and hes calmed down.

> >

> > His dementia, seeing things that are not there, being afraid,

(hears

> > something n TV about a fire or gunmen) and thinks its all taking

place right

> > here. I've been reading up on Lewy Bodies Dementia and from what

I read it

> > fits his action to a tee. We see his neurologist in a couple

weeks and I'm

> > going to ask him about Aircept. Somedays he's okay and others he

sleeps or

> > is way out of his head. I see him everyday and help him eat.

Sometimes he

> > can feed himself and others he can't move anything, or even open

his eyes.

> >

> > He can't be up by himself or he falls, tho' he keeps trying first

thing in

> > a.m. Also he doesn't sleep many nights so is exhausted. He

recognizes me

> > most of the time but doesn't know who he is.

> >

> > I'm probably saying this badly but wanted to show the

newer " members " some

> > of the things that go on. I do have him in a nursing home as

there is no

> > way I could tend him at home.

> >

> > Strong

> >

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> ****************

>

>

> ********************************

> *** Peg & Jim

> *** # 29 Cruz Heights

> *** Ipan-Talofofo, Guam 96930-4736

> *** USA

> ***

> *** Note: Guam is 15 hours ahead of

> *** Eastern Standard Time (EST).

> *** 14 ahead of EDT.

> ********************************