Need Help

[Guest guest]

Hi folks,

I don't post alot, but I read the digest daily, and print messages that I

think would be helpful to Jeff or his doctors. I need some advice. Jeff

has gone in to a period where he is very emotional about his condition. He

has broken down twice this week (we have been together 6 years, and I had

only seen him cry once or twice that whole time-both times within the past

12 months, relating to the disease) He came home from work today just to

see me, because he says that he feels like he's getting to the end, and

that he feels as though he's dying inside (physically-not emotionally).

He's afraid to fall asleep because he's afraid he won't wake up. I have

asked him why he feels like this, and he says that physically he's weak,

out of breath alot, lightheaded, dizzy, sees things in peripheral vision

that are not here. Also, I've noticed he gets sudden sharp pains in his

head from his right eye up over the top of his skull and to the base of the

neck. He says it feels like an electric shock. It happened yesterday when

we were at the mall. He's stumbling ALOT more. He wears the support

stockings that go up his calf to aid in the swelling, and hand & wrist

supports. He keeps dropping his keys, utensils, cell phone, etc. Today he

cried and told me how sorry he was that he's putting us through all of

this. We saw the doctor last week and he's ordered another MRI for later

this week to see if anything shows up. His last MRI was in January and was

mostly inconclusive. Can anyone out there relate to what he is feeling? I

can't even begin to imagine what he's going through, all I know is that my

husband, lover, friend is hurting, and I feel completely powerless to help

him. Since he came home this morning, I've had a lump in my throat that

won't go away. Any input would be appreciated. And, again, thanks to all

of you for listening.