Re: Digest Number 1750To a

[Guest guest]

a, My husband was actually sick for about 13 years or more. He was

first diagnosed with Parkinson's Disease and was treated for that for 6

years to no avail. Each time we told the nuerologist the meds were not

helping, he would up them or add something else, but kept insisting he had

PD. I didn't believe so, as the symptoms I saw didn't look like PD to me.

I started the rounds of neurological clinics, First Phoenix (Barrows) then

Loma (Calif) then Ohio State University where he was finally diagnosed

with PSP, by Dr son, who was really quite an expert with PSP. At least

he was working with those patients. He did say, as well as at Loma ,

that it is possible it was MSA but they were pretty sure he had PSP because

of the ocular problems. That was in 95. He passed away in 2000, after

being on a feeding tube and catheter for 4 years, and being almost totally

paralysed. I used a Hoyer lift to move him from bed to wheelchair. His

cognitive abilities seemed to remain pretty sharp, but he could not speak.

He was 73 when he passed away. If you want more information send me your

private e-mail and I will be happy to share anything I can with you.

Bernice cg to Ken spouse, 13 yrs ill dec. 06-23-00