Re: Pure Autonomic Failure - iluvbigcats

[Guest guest]

I'm so sorry to hear of all your troubles. You are most welcome to join us.

There are several members who have PAF and we have some information on it

that we post occasionally. You've reminded me that I haven't done that

lately. Where are you from? I live in Nova Scotia where it rained big

lovable cats and dogs all night last night.

Take care,

Pam

(unknown)

> I have Pure Autonomic Failure not (MSA), but is it alright that I

> still join your group? Since my dotors told me I've have gotten more

> questions than ansewers. They tell me not to worry but I have

> already lost most of my stomach due to the nerves being dead. I have

> went through a lot sense 1993. I know my dotors are doing all they

> can, but some times it hard to see through the pain. No one seems to

> understand. I know my illness is supposed not to be life threating,

> then they tell me not do this and don't do that.I have lost my job,

> my freedom, and my independance. I take a lot of medecine just to

> keep going. they don't really like it when I go and look up for

> myself the ansewers they can't or don't want to give me. Thank you

> for letting me talk, let me know if I can stay. iluvbigcats

>