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Hello Iluvbigcats:

I'm sorry I made it look like Anne had PAF and wasn't alive anymore and that isn't right. So I wanted to clear that up. Anne is still alive and living with PAF still. Just she isn't one that just sit's back and puts her feet up. Anne is one that goes and does everything and just about anything. So she dropped out of the group because it took time away from all that she has to do. If you see anyone go by on skates, It could be our Aussie Anne and then it could be you, if your like Anne.

TakeCare

Vera

Hello Iluvbigcats:

Of course it's alright that your here. Welcome to the group. We do have some on the group that has PAF. I wish that Anne was still here so she could tell you more about PAF. She's had and lived with it for over 20 years. She is a fighter and tried just about everything that is out there. She also had problems with her stomach , but went with a pace maker that helped her. Something that you may want to look into. If we can answer any question just ask. Timo's wife Ann has PAF. Right now I can't think of the others that also have this that are on the list. Where do you live?

My husband has MSA and I've been on this list two years now. My name is Vera and I am his caregiver. I live in the Los Angeles area of California.

here is the link for the Stomach pacemaker may ease chronic nausea

Take Care

Vera

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