Welcome iluvbigcats

[Guest guest]

Hello Iluvbigcats:

Of course it's alright that your here. Welcome to the group. We do have some on the group that has PAF. I wish that Anne was still here so she could tell you more about PAF. She's had and lived with it for over 20 years. She is a fighter and tried just about everything that is out there. She also had problems with her stomach , but went with a pace maker that helped her. Something that you may want to look into. If we can answer any question just ask. Timo's wife Ann has PAF. Right now I can't think of the others that also have this that are on the list. Where do you live?

My husband has MSA and I've been on this list two years now. My name is Vera and I am his caregiver. I live in the Los Angeles area of California.

here is the link for the Stomach pacemaker may ease chronic nausea

Take Care

Vera

I have Pure Autonomic Failure not (MSA), but is it alright that I

still join your group? Since my dotors told me I've have gotten more

questions than ansewers. They tell me not to worry but I have

already lost most of my stomach due to the nerves being dead. I have

went through a lot sense 1993. I know my dotors are doing all they

can, but some times it hard to see through the pain. No one seems to

understand. I know my illness is supposed not to be life threating,

then they tell me not do this and don't do that.I have lost my job,

my freedom, and my independance. I take a lot of medecine just to

keep going. they don't really like it when I go and look up for

myself the ansewers they can't or don't want to give me. Thank you

for letting me talk, let me know if I can stay. iluvbigcats