Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Timo &Anne I have also tried epoetin, (epogen) I had to give myself two injections a week for quite a while it built my red blood count back up, I also take iron. It stayed up for awhile but went down again.My doctor said that he wanted to cut my iron down to 325mg aday to see if it would drop again,he did have me taking 325mg three times aday. I go back 9-26-02 to have more blood drawn. He told my it wasn't supose to drop like that in a person with normal bone marrow (but who knows what normal for me these days. Eating Red meat is out of the question,I can't handle the meat, if I don't get it chewed good enought I get very sick. The docs at chaple hill had to make me a stomach with what was left, wich wasn't much. Some days I can eat good some days not so good. there isn't very much food that I can eat now. Some days I can't eat at all. Does your wife have spells of complet exsustion (I know that is not the way to spell that word, so forgive me ,OK) Spells where she can't control anything and the more she trys the worste it gets. My doc said to not fight it, just let it happen. That ok if your not out. Tell me more about yourselves, it's good to have someone who dosen't just guess what it like. my best to you both Quote Link to comment Share on other sites More sharing options...
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