Re: le & Anne

[Guest guest]

le & Anne,

I used to get sores in my mouth too! The dr. put me on folic acid for a while and then they just went away! Knock on wood!!! )

I was taking about a mg a day so you have to have a prescription for it but it is pretty cheap. You might ask about that.

Lots of Love

Glenda

--le,I have suffered from mouth ulcers practically since RP started back in 1979. I haven't heard from anyone else who does, until you. They were so bad in 1985 (the nursing staff called them my craters) I had to be fed through a nasal gasto tube which went on for a few months. Needless to say I lost a lot of weight, but the steroids soon took care of that! I still get a lot of them, along with a very sore mouth. I haven't really found anything that helps, have you?Anne C- In Rpolychondritis@y..., jasidan@y... wrote:> > > > > About the teeth... I have sensitive teeth and get infection easier > in my mouth now that I have been on the immune suppressant. We have > looked into the filling stuff and lots of other angles as far as this > darn RP goes. I think if you would like to check out some of the > surveys you can go to the group site to read the results. Also I > think there is a survey letter there too. > > > > > > Hi all,> > I forgot to ask, does anyone get mouth ulcers? I usually get 5 just > before a major flare. When I was very young, I had them all the time, > the docs said it was a vitamin B deficiency, but taking B did not help > at all.> leDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU