Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hallo Everyone !!!! Hope everyone is doing Ok and not having any pains. Glenda how did your sisters Surgery go today ??? And how are you holding up under all this pressure ?? Please get some rest too Ok .Be sending you all lots of prayers. le I wish I could help you with your sores in your mouth. But Don never had this. Ja he is the one with RP around here. He is doing really well even true he has been under a lot of stress lately. I just hope he stays good. Got a ? for you ? Have you though about coming to our meeting over labor day week end ?? You are not to far from us. Hope all newbies can still make it, it would be so good to get to know you all in person. Well I better hush for now holler again later OK sending you all a gentle Hug Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 > le I wish I could help you with your sores > in your mouth. But Don never had this. Ja he > is the one with RP around here. He is doing really well even true he has been under a lot of stress lately. I just hope he stays good. Got a ? > for you ? Have you though about coming to > our meeting over labor day week end ?? You are not to far from us. Hi Heidi, I so want to come, but my hubby made arrangements for us to visit some of his family. I haven't met them all yet. I am still trying to sweet talk him, so I will see how it goes le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Heidi, did you have to tell what you cooked for her supper? You know chicken and dumplings is a favorite with me and I can't make that dish at all. If I do no one will dare touch it. lol Pray is real better very soon. I know this will help. Granny Donnerstag Hallo Everyone !!! Wow we seams to having a lot of problems once more at the same time yet all are different. WOW. Ann this is only my personal felling OK .I think you need to find a new Dr. as soon as you can. 20mg Prednison some times is not enough to bring a flare under control. When Don was first Diagnosed he was on 30 mg. I know some of our member have been on much higher dose. He is now on 3 mg and most likely will be on that for the rest of his life. He also is taking 800 mg of Ibuprofen 3 x a day along with the prednison. Amber yes I was able to talk to your Mom last night. She sure is a sweet lady. Yes I was very much surprised when she told me she is on 160 mg of prednison for today and then lowering it to 100 mg. Now there have been a couple here that had to take 100 mg a day but most of them I think where not on this high dose for to long. Amber where you able to get a hold of Dr. Trentham ??? How did Mom do with her S.S. interview today ??? Denies I am so sorry you had to go back on the Prednison. Hope it works real fast for you. Love you girl hang in there OK. T. is also having a rough time right now. Between her sugar and RP she is ready to scream I think. Gee wiz she is right here in town and all I could do for her is cook her some Chicken + dumplings for supper. I just wish I could help each of you. Ok you all move closer and we have a party that would help right ?? If not then remember I do have something for the pains. LOL Well I better hush and go back in my corner and just keep wishing and Praying for you all that you soon be felling better . Please everyone Take your Medicine and Vitamins every day ON TIME and maybe you can get the RP back in a sleeping mood real soon. Sending you all a gentle Hug from okie land. Heidi DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Heidi, did you have to tell what you cooked for her supper? You know chicken and dumplings is a favorite with me and I can't make that dish at all. If I do no one will dare touch it. lol Pray is real better very soon. I know this will help. Granny Donnerstag Hallo Everyone !!! Wow we seams to having a lot of problems once more at the same time yet all are different. WOW. Ann this is only my personal felling OK .I think you need to find a new Dr. as soon as you can. 20mg Prednison some times is not enough to bring a flare under control. When Don was first Diagnosed he was on 30 mg. I know some of our member have been on much higher dose. He is now on 3 mg and most likely will be on that for the rest of his life. He also is taking 800 mg of Ibuprofen 3 x a day along with the prednison. Amber yes I was able to talk to your Mom last night. She sure is a sweet lady. Yes I was very much surprised when she told me she is on 160 mg of prednison for today and then lowering it to 100 mg. Now there have been a couple here that had to take 100 mg a day but most of them I think where not on this high dose for to long. Amber where you able to get a hold of Dr. Trentham ??? How did Mom do with her S.S. interview today ??? Denies I am so sorry you had to go back on the Prednison. Hope it works real fast for you. Love you girl hang in there OK. T. is also having a rough time right now. Between her sugar and RP she is ready to scream I think. Gee wiz she is right here in town and all I could do for her is cook her some Chicken + dumplings for supper. I just wish I could help each of you. Ok you all move closer and we have a party that would help right ?? If not then remember I do have something for the pains. LOL Well I better hush and go back in my corner and just keep wishing and Praying for you all that you soon be felling better . Please everyone Take your Medicine and Vitamins every day ON TIME and maybe you can get the RP back in a sleeping mood real soon. Sending you all a gentle Hug from okie land. Heidi DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
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