Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 Bill, I happen to agree with most of what you posted " that I am reprinting " with the EXCEPTION of “Doctor Shopping” -----------------------------------------------------------------------= YOU SAID: Personally, I feel it is better to focus on what can be done for the patients. 1. If you are unsure ask you family doctor who has known you the longest about a second opinion, that way you will get the opinion of someone who knows you AND has the training to help you make an informed decision. Don't " doctor shop " on your own. If you have not known any doctor long, check with a support group on your primary diagnoses. 2. Exercise! Even with Chiari there are exercises (not violent exercise) which can help. Get a prescription for physical therapy from your doctor. 3. Keep hydrated! This will not hurt a person with Chiari and will help MSA patients. 4. Eat a proper diet - this helps you fight any disease/disorder. 5. Don't panic! Panic and rash decisions can harm you more than wait and see, unless your family doctor agrees you need an immediate operation . They are trained to make this sort of decision, you are not. ------------------------------------------------------------------------ The fact that you need to take it one step further, and that is , you also need to be informed about all new Technology , Every day, something new is going on and you need to know, you the patient, just might want to try something that will help unless you have given up. And that is one’s own decision, I remember about 2 months ago, Deborah had resigned her self that she was going to die and in short order because of her declining condition and what the doctor had told us. She wanted me to call hospices and I flat refused. In stead I took over the investigation and intervention and Guess what, THEY WERE WRONG !!!!!!!!!!! I think that say’s it all, don’t you??????? Best regards, “tenacity’s man” _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 , You are entitled to your opinion, just as I am entitled to mine. I have tried to ask logical questions and in turn get no logical answers only personal attacks. Please answer the following questions without emotional attacks as I am truly interested in your logical answers. WHY do you feel all of Deborah's problems are related to medicines? You mention medicines as the cause of her problem in about 50% of your email and blast doctors for giving them to her. If the medicines did no good, why did your doctor continue them? My family doctor questioned the use of Eldepryl and the neuro and him talked it over and removed it from Charlotte's meds after about a year. On "technology" you have disagreed with me on stem cell research which is the most promising "technology" for a cure for Parkinson's and Juvenile Diabetes. I am only saying that PET scans are NOT proven in tests against autopsy, so you are basing your "correct" technology against old fashioned doctor evaluations of PD and MSA. Stem cell technology has proven over and over to cure mice of induced Parkinson's symptoms. It has also been shown to grow insulin producing cells in mice whose insulin producing cells were killed. Why is some technology (PET scan) good and other technology (stem cell research) bad? Take care, Bill Werre ======================================== Setzer wrote: Bill,I happen to agree with most of what you posted "that I am reprinting" with the EXCEPTION of “Doctor Shopping”-----------------------------------------------------------------------=YOU SAID:Personally, I feel it is better to focus on what can be done for the patients.1. If you are unsure ask you family doctor who has known you the longest about a second opinion, that way you will get the opinion of someone who knows you AND has the training to help you make an informed decision. Don't "doctor shop" on your own. If you have not known any doctor long, check with a support group on your primary diagnoses.2. Exercise! Even with Chiari there are exercises (not violent exercise) which can help. Get a prescription for physical therapy from your doctor.3. Keep hydrated! This will not hurt a person with Chiari and will help MSA patients.4. Eat a proper diet - this hel ps you fight any disease/disorder.5. Don't panic! Panic and rash decisions can harm you more than wait and see, unless your family doctor agrees you need an immediate operation . They are trained to make this sort of decision, you are not.------------------------------------------------------------------------The fact that you need to take it one step further, and that is , you also need to be informed about all new Technology , Every day, something new is going on and you need to know, you the patient, just might want to try something that will help unless you have given up. And that is one’s own decision, I remember about 2 months ago, Deborah had resigned her self that she was going to die and in short order because of her declining condition and what the doctor had told us. She wanted me to call hospices and I flat refused. In stead I took over the investigation and intervention and Guess what, THEY WERE WRO NG !!!!!!!!!!! I think that say’s it all, don’t you???????Best regards, “tenacity’s man”_________________________________________________________________Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.comIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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