Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Hi Glenda I take 5mg Folic Acid twice a week with the Methotrexate. I cannot say I've noticed a difference in the uclers or cold sores. I am so pleased yours are no longer troubling you, they are a real pain. Hope you are doing ok. Anne -- In Rpolychondritis@y..., " Glenda " wrote: > le & Anne, > I used to get sores in my mouth too! The dr. put me on folic acid for a while and then they just went away! Knock on wood!!! ) > > I was taking about a mg a day so you have to have a prescription for it but it is pretty cheap. You might ask about that. > > Lots of Love > Glenda > > --le, > I have suffered from mouth ulcers practically since RP started back > in 1979. I haven't heard from anyone else who does, until you. They > were so bad in 1985 (the nursing staff called them my craters) I had > to be fed through a nasal gasto tube which went on for a few months. > Needless to say I lost a lot of weight, but the steroids soon took > care of that! I still get a lot of them, along with a very sore > mouth. I haven't really found anything that helps, have you? > Anne C > > - In Rpolychondritis@y..., jasidan@y... wrote: > > > > > > > > About the teeth... I have sensitive teeth and get infection > easier > > in my mouth now that I have been on the immune suppressant. We > have > > looked into the filling stuff and lots of other angles as far as > this > > darn RP goes. I think if you would like to check out some of the > > surveys you can go to the group site to read the results. Also I > > think there is a survey letter there too. > > > > > > > > > > Hi all, > > > > I forgot to ask, does anyone get mouth ulcers? I usually get 5 just > > before a major flare. When I was very young, I had them all the > time, > > the docs said it was a vitamin B deficiency, but taking B did not > help > > at all. > > le > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
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