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Folic acid/Glenda

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Hi Glenda

I take 5mg Folic Acid twice a week with the Methotrexate. I cannot

say I've noticed a difference in the uclers or cold sores. I am so

pleased yours are no longer troubling you, they are a real pain.

Hope you are doing ok.

Anne

-- In Rpolychondritis@y..., " Glenda " wrote:

> le & Anne,

> I used to get sores in my mouth too! The dr. put me on folic acid

for a while and then they just went away! Knock on wood!!! :o)

>

> I was taking about a mg a day so you have to have a prescription

for it but it is pretty cheap. You might ask about that.

>

> Lots of Love

> Glenda

>

> --le,

> I have suffered from mouth ulcers practically since RP started

back

> in 1979. I haven't heard from anyone else who does, until you.

They

> were so bad in 1985 (the nursing staff called them my craters) I

had

> to be fed through a nasal gasto tube which went on for a few

months.

> Needless to say I lost a lot of weight, but the steroids soon

took

> care of that! I still get a lot of them, along with a very sore

> mouth. I haven't really found anything that helps, have you?

> Anne C

>

> - In Rpolychondritis@y..., jasidan@y... wrote:

> >

> > >

> > > About the teeth... I have sensitive teeth and get infection

> easier

> > in my mouth now that I have been on the immune suppressant. We

> have

> > looked into the filling stuff and lots of other angles as far

as

> this

> > darn RP goes. I think if you would like to check out some of

the

> > surveys you can go to the group site to read the results. Also

I

> > think there is a survey letter there too.

> > >

> > >

> >

> > Hi all,

> >

> > I forgot to ask, does anyone get mouth ulcers? I usually get 5

just

> > before a major flare. When I was very young, I had them all the

> time,

> > the docs said it was a vitamin B deficiency, but taking B did

not

> help

> > at all.

> > le

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT

IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR

DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A

SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER

EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US.

THANK YOU

>

>

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