Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 Hey. I have a possible survey topic - or perhaps many... As I understood it this weekend, the MSA docs don't seem to think that vision problems are common among us. As a result, I wondered if we could have a survey about vision problems, perhaps even clarifying what type i.e. double blurred " 3-D " perceptions of inanimate objects moving (i.e. that carpet was so " busy " it moved all around) and even hallucinatory - where we see something, or think we do, moving on the wall or something - but there's nothing there - or just a speck... Then, after we get this compiled, we could get it to Dr. on, so they would know what we do indeed experience. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 , I am not sure, but seem to remember that several people have had problems with vision due to cerebellar problems. Charlotte had one eye that when bad faster than the other and needed eyeglass changes more often. Are you confusing answers of " not normally a problem with MSA " with " not a problem with MSA " ? Take care, Bill Werre ================================= > > > Date: 2002/09/15 Sun PM 11:45:11 CDT > To: shydrager > Subject: Possible survey topic? > > Hey. > > I have a possible survey topic - or perhaps many... > > As I understood it this weekend, the MSA docs don't seem to think > that vision problems are common among us. As a result, I wondered if > we could have a survey about vision problems, perhaps even clarifying > what type i.e. > > double > > blurred > > " 3-D " > > perceptions of inanimate objects moving (i.e. that carpet was > so " busy " it moved all around) > > and even hallucinatory - where we see something, or think we do, > moving on the wall or something - but there's nothing there - or just > a speck... > > Then, after we get this compiled, we could get it to Dr. on, > so they would know what we do indeed experience. > > Just a thought. > > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Vision problems may not be common with MSA, but they are very common with Parkinson's, and since there is considerable overlap of symptoms, it would seem they would be a problem for some MSA patients too. If you are having such problems a visit to a Neurological Opthamologist might be in order. In our area, several patients have had good luck with prisms in their glasses prescribed by these doctors. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hello group, I am puzzled by the ongoing discussion about vision problems in MSA. If you look at almost any of the web sites that list symptoms of MSA (such as We Move), they invariably list vision, blurred, double vision, etc. as common symptoms. I haven't followed this discussion too closely until recently, but can someone remind me why we came to think there is a doubt that MSA affects vision? Jerry Cash Re: Possible survey topic? Vision problems may not be common with MSA, but they are very common with Parkinson's, and since there is considerable overlap of symptoms, it would seem they would be a problem for some MSA patients too. If you are having such problems a visit to a Neurological Opthamologist might be in order. In our area, several patients have had good luck with prisms in their glasses prescribed by these doctors. Barbara If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Jerry, I don't think there is any question that it CAN be a problem. It seems to be more a problem with the OPCA form of MSA as not everyone has the problem. Therefore some doctors do not count it as a direct MSA problem evidently. I think the doctors use the symptoms that almost every MSA patient has as a reference. I believe it is more a question of semantics than symptoms. You should know by now that every patient is slightly different in MSA. ) Take care, Bill Werre ========================== Jerry Cash wrote: >Hello group, > >I am puzzled by the ongoing discussion about vision problems in MSA. If >you look at almost any of the web sites that list symptoms of MSA (such >as We Move), they invariably list vision, blurred, double vision, etc. >as common symptoms. I haven't followed this discussion too closely >until recently, but can someone remind me why we came to think there is >a doubt that MSA affects vision? > >Jerry Cash > > Re: Possible survey topic? > > >Vision problems may not be common with MSA, but they are very common >with >Parkinson's, and since there is considerable overlap of symptoms, it >would >seem they would be a problem for some MSA patients too. If you are >having >such problems a visit to a Neurological Opthamologist might be in order. >In >our area, several patients have had good luck with prisms in their >glasses >prescribed by these doctors. > Barbara > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi Barbara. Are you the Barbara I met at the conference? :-) If so, really sorry I didn't recall you. Anyway... My optometrist first tried prisms about a year ago. Then I saw an ophthalmologist. Then I saw a neuro-ophthalmologist. He too tried prisms, but without my knowing he did. When he did so, he found no improvement. This told him it was not a " mechanical " problem with my eyes. To me, after learning of autonomic neuropathy diagnosis months later, it made sense - my neural connections are messed up - so no matter how much the glasses adjust - my brain will say " it's not right " and overcorrect. Anyway, thanks for the suggestion. A valid one for any who haven't already seen one. Seems I've heard from others on here though who have tried prisms and had no success. Catcha later. > Vision problems may not be common with MSA, but they are very common with > Parkinson's, and since there is considerable overlap of symptoms, it would > seem they would be a problem for some MSA patients too. If you are having > such problems a visit to a Neurological Opthamologist might be in order. In > our area, several patients have had good luck with prisms in their glasses > prescribed by these doctors. > Barbara Quote Link to comment Share on other sites More sharing options...
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