> re still around, and question

[Guest guest]

Hi .

First, I am glad you're still around. Thanks for staying.

Second, I have a sincere question. How are we suppose to doc shop,

when it seems no doc really understands all aspects of this.

Certainly, most of us cannot find a doc which we could

consider " local " with whom we can converse on any " routine " basis.

In fact, in conversations with many this morning (at the Chicago MSA

Conference) we all agreed that we often have to go in and tell our

docs what we've found, and then ask them what they think about what

we've found. In most cases, they just say " sounds good to me - let's

try it. "

Thanks - hopefully others will read this too - because it's certainly

not limited to you responding :-)

[Guest guest]

,

Doc shopping may simply mean doing your own research or, if you're

lucky to have a cooperative and willing doctor, have him or her on

board - perhaps the doctor can help find specialists and documentation

(I've found this is usually not possible). Research can be done at

medical libraries, medical conferences, the internet, support groups,

about conditions and the best doctors in that area and considering

consulting with the " experts " in the field (by mail, email, phone,

personal visits), and following leads, if they arise. For example, we

followed a lead when 3 nurses, all independently of each other, told

us that our child's symptoms sounded like Chiari, even though several

specialists said otherwise - it ended up being the right diagnosis as

surgery alleviated a multitude of progressive symptoms. However, the

lead made us research - we went to the local university medical

library, joined medical forums and spoke with people with that

diagnosis and learnt so much - we found the experts and one thing led

to another.

Doc shopping does not mean just picking any old doctor out of a hat,

although getting a second or third opinion is usually a good idea.

My 2 cents' worth.

ES

> Hi .

>

> First, I am glad you're still around. Thanks for staying.

>

> Second, I have a sincere question. How are we suppose to doc shop,

> when it seems no doc really understands all aspects of this.

> Certainly, most of us cannot find a doc which we could

> consider " local " with whom we can converse on any " routine " basis.

> In fact, in conversations with many this morning (at the Chicago MSA

> Conference) we all agreed that we often have to go in and tell our

> docs what we've found, and then ask them what they think about what

> we've found. In most cases, they just say " sounds good to me -

let's

> try it. "

>

> Thanks - hopefully others will read this too - because it's

certainly

> not limited to you responding :-)

>

>

[Guest guest]

,

That is my point. Maybe a lot of people on this list don’t have MSA after

all. You know what I would suggest.

“tenacity’s man”

>

>Reply-To: shydrager

>To: shydrager

>Subject: > re still around, and question

>Date: Mon, 16 Sep 2002 05:51:23 -0000

>

>Hi .

>

>First, I am glad you're still around. Thanks for staying.

>

>Second, I have a sincere question. How are we suppose to doc shop,

>when it seems no doc really understands all aspects of this.

>Certainly, most of us cannot find a doc which we could

>consider " local " with whom we can converse on any " routine " basis.

>In fact, in conversations with many this morning (at the Chicago MSA

>Conference) we all agreed that we often have to go in and tell our

>docs what we've found, and then ask them what they think about what

>we've found. In most cases, they just say " sounds good to me - let's

>try it. "

>

>Thanks - hopefully others will read this too - because it's certainly

>not limited to you responding :-)

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>