Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Hi all.... I'm sending this to both the RP Foundation group and the Support Group also, for those of you who have not yet sent a contribution to the Foundation. Just wanted to thank Elaine and the people who contributed to August's newsletter. It was wonderful... Would like to add that we have received our IRS tax exempt status. So.. Now we can get down to some serious work.... We will be starting to form committees and working on brochures, fundraisers, looking for corporate contributions etc... There is a lot in the making... PLEASE... if anyone is interested in volunteering for any position, let Barbara Angerhofer know..... You can post to the foundation site if you have already contributed or the group... I'm sure she will get your message... Tell her what your interests and talents are.... She is the Volunteer co ordinator and will put you to work as soon as you are needed. If you have any ideas on fundraising, etc... just post it and every suggestion will be considered... We have over 200 members in the Support Group... I know some of you still haven't sent in the contribution, so please..... remember in the back of yourmind, what a GREAT cause this is going to.... We have some drs that are willing to help us now and things are going to start rolling and maybe, just maybe... we can find a CURE for this darn RP.... At least maybe there will be hope for our children. We are going to make the public and the medical profession aware of RP.... Think of all the people who are still not diagnosed, have no computer and can't get the information they need... We can help them... Think of the doctors who have never seen or heard of RP...... We will help to educate them... YOu have seen what a wonderful support group we have, well the Foundation will be just as powerful... but, we need everyones help... Thanks to all who have already contributed... It is greatly appreciated... This is all volunteer work that is being done...No one is paid... It is a non profit Foundation. What has been contributed is being used strictly for the Foundation... If interested in making a $15 contribution (or more if desired) for a great cause and receiving the newsletter, please make check or money order out to RP Foundation and send to: RP Foundation c/o Colloran 775 Bounty Place Manteca, CA 95337 Thanks again to all that have made this dream come true... This months newsletter had a story on , Roy's wife... If anyone would like to submit there story about RP to be published in the newletter please send it to myself, Heidi, Roy, Lu, . We would like to feature someone in each issue... Because RP is so different for each of us, this will help to educate all... also, any suggestions that you would like to see in the newletter, please let us know... Have already had a suggestion to include a drug each month and the info on that drug...Give us some hints....this is your Foundation and we want to print what you want to read... Sorry this was so long, promise I will shorten my post next time. LOL Quote Link to comment Share on other sites More sharing options...
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