Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Thanks for the clarification, Bill. Now, as I suspected all along, I know I have dementia because I have most of the symptoms of those in your last category. It's a terrible thing to lose a mind. Maybe its in the refrigerator where I last put the shoe polish. Technically demented or not, patients with confusion and poor occasional memory make caregiving a bit more frustrating (not to mention, heartbreaking, at times), and I don't think anyone should ignore the possibility that these things are occurring in our loved-ones. Carol, I reread your " working memory " review and found it to be well to the point and appreciate your support on this. As to vision, the same applies. rightly mentioned his perception of the conference doctors' opinion. I bet few doctors treating MSA patients ever think to send them to the ophthalmologist or neuro-ophthalmologist for a check on their vision, BECAUSE THEY DON'T READ THE MSA WEBSITE, Jerry. That's why we may have gotten the idea of no vision problems. Chuck has different prescriptions for each eye (not prisms) to allow for differences in accommodation and wears sun glasses while watching TV, which really looks funny in a dark room, to combat the pupil problem. Next, shall we start on low voice volume? Barbara Woodford (at the conference) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Barbara, Believe me, I know the frustration of dealing with MSA ) You mean everyone doesn't keep the shoe polish in the refrigerator? Even nurses get mixed up, Charlotte's nurse was interrupted three times by stupid questions when she was going to give her an antibiotic - I calmly asked the nurse if she realized she was about to put the antibiotic into the PEG instead of the PIC line. ) I think quite a few people with MSA have the early problem of eyesight going faster in one eye, but our regular visit to the opthamologist caught that quickly and cured it with new glasses. Having MSA does not mean you stop normal doctor visits and we had a visit with the opthamologist every two years. Charlotte also wore sunglasses often and we lowered the light in her room to accommodate that problem. She could NOT go outdoors without sunglasses. Low voice volume is common as the MSA progresses. Speech therapy should help at least somewhat. Make sure the therapist works on volume as well as clarity. Our therapist got Charlotte to speak louder by doing the therapy while sitting across the room and speaking loud herself. However, as you know, patients perform for therapists better than caregivers ) Take care, Bill Werre =================================== woodford wrote: >Thanks for the clarification, Bill. Now, as I suspected all along, I know >I have dementia because I have most of the symptoms of those in your last >category. It's a terrible thing to lose a mind. Maybe its in the >refrigerator where I last put the shoe polish. > >Technically demented or not, patients with confusion and poor occasional >memory make caregiving a bit more frustrating (not to mention, >heartbreaking, at times), and I don't think anyone should ignore the >possibility that these things are occurring in our loved-ones. > >Carol, I reread your " working memory " review and found it to be well to >the point and appreciate your support on this. > >As to vision, the same applies. rightly mentioned his perception >of the conference doctors' opinion. I bet few doctors treating MSA >patients ever think to send them to the ophthalmologist or >neuro-ophthalmologist for a check on their vision, BECAUSE THEY DON'T >READ THE MSA WEBSITE, Jerry. That's why we may have gotten the idea of >no vision problems. > >Chuck has different prescriptions for each eye (not prisms) to allow for >differences in accommodation and wears sun glasses while watching TV, >which really looks funny in a dark room, to combat the pupil problem. > >Next, shall we start on low voice volume? > > >Barbara Woodford (at the conference) > > > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Hi: Just my two cents worth. I wrote Vandy to see if my husbands brain tissue report was finished and got a personal reply from Dr. on. Jack did have MSA, but they had not completed everything yet. Dr. on said he did monitor the list serve so he does know what people have been discussing and is very interested. I have been very impressed with Vanderbilt and all they have tried to do to help us with this media. So someone is listening. Yes, Jack did have some double vision and to the point that he was not able to read for the last year. He had to go to audio books. I do not feel he had dementia, but when his blood pressure was low along with his oxygen his thinking process was slower. He could still give me directions when I drove us places and remembered things I forgot. To the end he was sharp. I miss his sweet smile and gentle, kind spirit, but know he is in a better place. Hugs, Judy Quote Link to comment Share on other sites More sharing options...
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