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I am posting this message with a very heavy heart. My father passed

away on Friday September 13th. He passed away at home with my mother,

sister & myself at his bedside. It was the scariest thing I have ever

been through in my life, but it was the most peaceful thing that has

ever happened. I am glad I was there. To see him move out of a place

of suffering and into a peaceful place with God, where he was meant

to be. At the same time I am angry that we have only had this

diagnosis for 3 weeks before he was taken from us. My mother donated

his brain to UNC for the study of shy-drager. We hope that with our

loss that someone else will be helped with our decision. I know he is

in a better place, and it will get easier, but for now we are all

suffering such sorrow. I thank all of you out there for being a

member of this support group, and I hope that I can help someone else

as all of you have. Please take a moment to read this poem that my

daughter wrote for her grandfather the night he passed away.

GOOD-BYE PA-PA

As you lose your grip on life, and begin your journey above

Just know you're leaving all of us, but still remaining is our love.

I'll never forget the smiles you smiled, or the laughs you brought to

me

But heaven is a greater place, in which you're meant to be.

Watch down on us, and always know, a piece of our heart is taken,

We're so happy you're not suffering, but still our heart is breaking.

We know it wasn't your fault, God wanted you with him and his glory,

I'll never forget your tape recorder, or any of your old stories.

Papa Wallace we love you, but now we must say good-bye,

So you can be with the other angels up in Heaven's plentiful sky.

We'll miss you!

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I do not know your personal name as you did not sign your note, but God

knows it.

I am very sorry to hear about your dad. I cannot ease the pain you are

going through now, but it will heal and you will have to go on. There

will always be an empty place in your heart but that too will grow less

tender and you will accept the loss.

May God bless you and your family. May He give you comfort, courage,

and wisdom, in the coming days and months.

Barb in Arlington, Tx.

Surviving spouse of Ralph, who was taken in July of 2000

--

" Have a heart that never hardens, a temper that never tries, and a touch

that never hurts. "

Dickens

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,

I'm sorry to hear about your father's passing. I am glad that you and your

family were able to be with him when he left this world. I know you are in

a lot of pain right now, but it will ease and you will remember the good

things about your Dad; hold those memories in your heart and you will always

have him with you.

With sympathy,

Carol & Rob

Lexington, MA

My father passed.

> I am posting this message with a very heavy heart. My father passed

> away on Friday September 13th. He passed away at home with my mother,

> sister & myself at his bedside. It was the scariest thing I have ever

> been through in my life, but it was the most peaceful thing that has

> ever happened. I am glad I was there. To see him move out of a place

> of suffering and into a peaceful place with God, where he was meant

> to be. At the same time I am angry that we have only had this

> diagnosis for 3 weeks before he was taken from us. My mother donated

> his brain to UNC for the study of shy-drager. We hope that with our

> loss that someone else will be helped with our decision. I know he is

> in a better place, and it will get easier, but for now we are all

> suffering such sorrow. I thank all of you out there for being a

> member of this support group, and I hope that I can help someone else

> as all of you have. Please take a moment to read this poem that my

> daughter wrote for her grandfather the night he passed away.

>

> GOOD-BYE PA-PA

> As you lose your grip on life, and begin your journey above

> Just know you're leaving all of us, but still remaining is our love.

>

> I'll never forget the smiles you smiled, or the laughs you brought to

> me

> But heaven is a greater place, in which you're meant to be.

>

> Watch down on us, and always know, a piece of our heart is taken,

> We're so happy you're not suffering, but still our heart is breaking.

>

> We know it wasn't your fault, God wanted you with him and his glory,

> I'll never forget your tape recorder, or any of your old stories.

>

> Papa Wallace we love you, but now we must say good-bye,

> So you can be with the other angels up in Heaven's plentiful sky.

>

> We'll miss you!

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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I am so sorry to hear about your father--I lost my mother Joyce to MSA (71,

11/5/00) and know what a huge hole it leaves. Your daughter's words are

beautiful--it is clear they shared great love. I will keep you all and your

father in my thoughts, Debbie

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What a beautiful poem. It says so much and it made me cry. Peace be with

you in your time of sorrow.

Willow from Juneau, AK

My father passed.

> I am posting this message with a very heavy heart. My father passed

> away on Friday September 13th. He passed away at home with my mother,

> sister & myself at his bedside. It was the scariest thing I have ever

> been through in my life, but it was the most peaceful thing that has

> ever happened. I am glad I was there. To see him move out of a place

> of suffering and into a peaceful place with God, where he was meant

> to be. At the same time I am angry that we have only had this

> diagnosis for 3 weeks before he was taken from us. My mother donated

> his brain to UNC for the study of shy-drager. We hope that with our

> loss that someone else will be helped with our decision. I know he is

> in a better place, and it will get easier, but for now we are all

> suffering such sorrow. I thank all of you out there for being a

> member of this support group, and I hope that I can help someone else

> as all of you have. Please take a moment to read this poem that my

> daughter wrote for her grandfather the night he passed away.

>

> GOOD-BYE PA-PA

> As you lose your grip on life, and begin your journey above

> Just know you're leaving all of us, but still remaining is our love.

>

> I'll never forget the smiles you smiled, or the laughs you brought to

> me

> But heaven is a greater place, in which you're meant to be.

>

> Watch down on us, and always know, a piece of our heart is taken,

> We're so happy you're not suffering, but still our heart is breaking.

>

> We know it wasn't your fault, God wanted you with him and his glory,

> I'll never forget your tape recorder, or any of your old stories.

>

> Papa Wallace we love you, but now we must say good-bye,

> So you can be with the other angels up in Heaven's plentiful sky.

>

> We'll miss you!

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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Dear ,

I read with extreme saddness your note about your father's passing. Since

you called not so many days ago, I was unable to do much reading from this

email list.

How very shockingly sudden, though you knew even then this was a

possibility. Remember to reach out to friends and share your thoughts.

Remember that never lessened, but somehow less lighter, our sorrows are when

we share with friends. And then taking that next step to help others. It

does a world of good.

Yes, your family's decision to donate his brain will help. How might that

brain help? Just think of the impact it will have on a new doctor to learn

how devastating this disorder can be. Imagine how something like that will

last the lifetime of that doctor. What we learn when young we carry with

us. Yes, your decision will help many in the future.

Tell your daughter she did a good job of capturing her love, and her

understanding. Surprisingly, children can be the most resilient in the

family. They live in the moment and enjoy blessings they have. It is also

clear that Mom did a good job talking her daughter to help prepare her.

There is no doubt that in this case love flows in the family. To the

granddaughter from the mother. To the mother from her parents. Much

changed. But so much more has not. Love given freely always grows. You

can't take it with you when you die? Au contraire! Love. Love you do keep

with you. Love is the greatest of all gifts. Love is immortal. So, as you

struggle with your father's passing, take a small moment to weep and at the

same time rejoice in the love he showed his entire family.

My prayers are with you and your family. May God's Grace and Peace be

yours.

Regards,

=jbf=

B. Fisher

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  • 8 years later...

,

So sorry for your loss but he is at peace now. The poem is beautiful and

really says it all for you and your family.

S.

My father passed.

> I am posting this message with a very heavy heart. My father passed

> away on Friday September 13th. He passed away at home with my mother,

> sister & myself at his bedside. It was the scariest thing I have ever

> been through in my life, but it was the most peaceful thing that has

> ever happened. I am glad I was there. To see him move out of a place

> of suffering and into a peaceful place with God, where he was meant

> to be. At the same time I am angry that we have only had this

> diagnosis for 3 weeks before he was taken from us. My mother donated

> his brain to UNC for the study of shy-drager. We hope that with our

> loss that someone else will be helped with our decision. I know he is

> in a better place, and it will get easier, but for now we are all

> suffering such sorrow. I thank all of you out there for being a

> member of this support group, and I hope that I can help someone else

> as all of you have. Please take a moment to read this poem that my

> daughter wrote for her grandfather the night he passed away.

>

> GOOD-BYE PA-PA

> As you lose your grip on life, and begin your journey above

> Just know you're leaving all of us, but still remaining is our love.

>

> I'll never forget the smiles you smiled, or the laughs you brought to

> me

> But heaven is a greater place, in which you're meant to be.

>

> Watch down on us, and always know, a piece of our heart is taken,

> We're so happy you're not suffering, but still our heart is breaking.

>

> We know it wasn't your fault, God wanted you with him and his glory,

> I'll never forget your tape recorder, or any of your old stories.

>

> Papa Wallace we love you, but now we must say good-bye,

> So you can be with the other angels up in Heaven's plentiful sky.

>

> We'll miss you!

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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