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Re: Digest Number 1914

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In a message dated 8/13/01 9:44:11 PM Pacific Daylight Time,

hiacynth1@... writes:

<<

I'm going into my 7th week of metho and still

haven't noticed much of an improvement. About 2

>>

Chuck and , I think it takes a good 3 months for the metho to even

START to work... This is what I have read and was told by my drs. They

wouldn't even let me try to decrease my pred until after 3 months.... I

might be wrong on this...anyone else have any imput.

Oh.. Chuck... the very first few weeks I took metho it did cause terrible

migraine. I think Judy O had this problem too... but it did go away after my

body adjusted... Remember, this is a pretty toxic drug and it takes time for

our bodies to adjust to these changes... Well at least it did mine... LOL

Good luck again.

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" if you have any info you care to share about the

METHO... please send it too me....Chuck "

Hi Chuck,

I'm going into my 7th week of metho and still

haven't noticed much of an improvement. About 2

wks ago, I increased my dosage from 7.5 to 10mg,

so maybe there'll be some improvement soon. I

have been taking folic acid (it's in my

multivitamin) so I haven't experienced any kind

of nausea that other people have complained

about. Haven't noticed any hair falling out

either. The only thing I notice is that I don't

feel " right. " It's not exhaustion, nor is it a

flaring or a mental/emotional thing (we just love

our Prednisone, do we???). I wish I could tell

you better, but I just don't feel like doing much

of anything. The feeling isn't so overwhelming

that I could point a finger to something and say,

yes I'm absolutely tired, or I'm sore, etc, etc.

I think that I may have put a lot of expectations

on the metho. Entering my 6th week, which seems

to be the " magic " number drs give when it comes

to seeing any results of metho, I expected my

breathing problems to go away, get my voice back,

etc. Nothing really has happened yet. My stamina

is about normal, but then again, we all have our

good days and bad days and sometimes they're half

days of good and bad. Who can tell? Some days I

think I'm going to have a good day and I go to

the gym or work and I'm having the worst time

breathing. Some days I feel like I'm going to get

beaten by life, and I go to the gym or work and

I'm having a great day... Anyway, I just wanted

to tell you that it's hard to tell with metho.

Like people have been saying, everyone's

different.

I have noticed that my teeth hurt and it only

started when I first started with metho. Please

tell us if this happens to you. It's really

annoying.

I noticed that for most of today I got my voice

back (albeit a rough and lower version), and it

didn't sound strained or mechanical like it has

been (except for a short time when I was outside

trying to talk to my friend). I still have to

pause for breath in btn sentences, and it sounded

different, but a good different. I don't know

what it's going to sound like tomorrow though. I

start my next round of metho tomorrow, so who

knows what the next 3 days will be like?

Good luck to you Chuck and I hope you feel

better. Take folic acid with your metho. Seems to

be a good idea.

=====

When choosing the lesser of two evils,

I always like the one I haven't tried.

-- Mae West

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