Dementia and problems with vision

[Guest guest]

I thought I'd jump in here. I'm willing to certify that Peg has vision

problems of a variety of kinds as well as problems with all four of the

following. Of course some may argue that Peg may not exactly have MSA but

that's been the primary diagnosis for at least nine years. It's a little

strange to be dealing with such symptoms most days and then have the opinion

expressed that MSA patients don't have those symptoms. My guess is, like

others, that it depends on what areas of the brain are affected and that as

the disease progresses, more areas of the brain are affected. Of course I'm

not anxious to get a definitive diagnosis.

Peg and Jim from Guam

*********8

Most types of cognition are spared in MSA. These functions usually

remain intact:

- Short term memory

- Long term memory

- Overall intelligence

- Language function (diffferent from speech)

**********

********************************

*** Peg & Jim

*** # 29 Cruz Heights

*** Ipan-Talofofo, Guam 96930-4736

*** USA

***

*** Note: Guam is 15 hours ahead of

*** Eastern Standard Time (EST).

*** 14 ahead of EDT.

********************************

[Guest guest]

Jim:

Shy-Drager Syndrome was Ken's primary diagnosis for over eight years, and on

autopsy, it was fund to be totally wrong. He had Parkinson's and DLBD, no

signs of MSA. I will forward the article that Pam sent me on DLBD

masquerading as MSA. if I can find it that is.

Love, Barbara

[Guest guest]

Jim,

Please note the word " usually " in my write-up. I agree that sometimes is

seems to me that Rob has trouble in all those areas. When I hear the

explanation of working memory however, I can see how my impression might be

one of short-term memory loss but the " expert " might define it as a working

memory deficit.

I think the important thing is that even the experts agree that cognitive

function can be impaired. The fact that they use different terms of art

than us lay folk who deal with the disease daily is not really the issue.

I think the " dementia " and vision issues are further complicated by the fact

that many of the medications can cause confusion and sometimes blurred

vision, so it's difficult to tell sometimes what's the disease and what's

the medication.

My two cents,

Carol & Rob

Lexington, MA

Dementia and problems with vision

> I thought I'd jump in here. I'm willing to certify that Peg has vision

> problems of a variety of kinds as well as problems with all four of the

> following. Of course some may argue that Peg may not exactly have MSA but

> that's been the primary diagnosis for at least nine years. It's a little

> strange to be dealing with such symptoms most days and then have the

opinion

> expressed that MSA patients don't have those symptoms. My guess is, like

> others, that it depends on what areas of the brain are affected and that

as

> the disease progresses, more areas of the brain are affected. Of course

I'm

> not anxious to get a definitive diagnosis.

>

> Peg and Jim from Guam

>

>

> *********8

> Most types of cognition are spared in MSA. These functions usually

> remain intact:

> - Short term memory

> - Long term memory

> - Overall intelligence

> - Language function (diffferent from speech)

> **********

>

>

> ********************************

> *** Peg & Jim

> *** # 29 Cruz Heights

> *** Ipan-Talofofo, Guam 96930-4736

> *** USA

> ***

> *** Note: Guam is 15 hours ahead of

> *** Eastern Standard Time (EST).

> *** 14 ahead of EDT.

> ********************************

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Peg & Jim,

I too want to jump in here (I'm behind since down with flu for 3 days) but

Warren has vision problems and often can't move or follow with his eyes,

sometimes says he can't see anything. Whether its part of the MSA/dementia

noone has said definitely. He also has lost short term memory, long term

and the ability to be cognitive in conversations, etc. His speech is also

interrupted and some times repetitive of one word over and over. He was

diagnosed with Shy-Drager (Dr's term) 12/1/99.

S.

Dementia and problems with vision

> I thought I'd jump in here. I'm willing to certify that Peg has vision

> problems of a variety of kinds as well as problems with all four of the

> following. Of course some may argue that Peg may not exactly have MSA but

> that's been the primary diagnosis for at least nine years. It's a little

> strange to be dealing with such symptoms most days and then have the

opinion

> expressed that MSA patients don't have those symptoms. My guess is, like

> others, that it depends on what areas of the brain are affected and that

as

> the disease progresses, more areas of the brain are affected. Of course

I'm

> not anxious to get a definitive diagnosis.

>

> Peg and Jim from Guam

>

>

> *********8

> Most types of cognition are spared in MSA. These functions usually

> remain intact:

> - Short term memory

> - Long term memory

> - Overall intelligence

> - Language function (diffferent from speech)

> **********

>

>

> ********************************

> *** Peg & Jim

> *** # 29 Cruz Heights

> *** Ipan-Talofofo, Guam 96930-4736

> *** USA

> ***

> *** Note: Guam is 15 hours ahead of

> *** Eastern Standard Time (EST).

> *** 14 ahead of EDT.

> ********************************

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>