Why wait for test results?

[Guest guest]

I was just catching up with recent messages here and came across B.

Werre's response about testing and how much is enough.

I just completed a week in which I received a second MRI, an EEG, and

a spinal tap. And now I'm asking myself - what for? Any diagnosis I

receive will be something incurable and all I can possibly do is treat

symptoms as they come along.

I guess I'm just venting frustration - but I'm glad to see that

someone shares some of these feelings.

[Guest guest]

Anne,

The doctor's are being thorough and still trying to determine exactly

what you have. In some rare cases, they may find that you have a

curable disorder such as Chiari. In the meantime, hang in there and

leave the diagnoses to your doctors. We all know how frustrating all of

the problems with a brain disorder are and wish you well. My comments

earlier were aimed at patients asking for specific tests NOT at doctors

you are trained to find the problem. If you have questions on tests -

ask the doctor why they ordered a certain test. A second MRI may be to

see possible progression.

Take care, Bill Werre

==============================================================

anneamy2000 wrote:

>I was just catching up with recent messages here and came across B.

>Werre's response about testing and how much is enough.

>

>I just completed a week in which I received a second MRI, an EEG, and

>a spinal tap. And now I'm asking myself - what for? Any diagnosis I

>receive will be something incurable and all I can possibly do is treat

>symptoms as they come along.

>

>I guess I'm just venting frustration - but I'm glad to see that

>someone shares some of these feelings.

>

[Guest guest]

Greetings!

I noted you wrote:

> I just completed a week in which I received a second MRI, an EEG, and

> a spinal tap. And now I'm asking myself - what for? Any diagnosis I

> receive will be something incurable and all I can possibly do is treat

> symptoms as they come along.

>

> I guess I'm just venting frustration - but I'm glad to see that

> someone shares some of these feelings.

Vent away! You are definitely not alone. And reaching acceptance over that

is very hard. I want it to be fixed. It does not appear it ever will be

fixed. And in some ways it just keeps progressing.

What does seem to help is to aggressively manage symptoms. When they get

bad, they literally can damage the body. Be aggressive, push your doctors

when you need to do so. Don't take no for an answer if a better quality of

life can be attained.

But please ALWAYS feel free and safe to vent here. We all understand

(either as a caregiver or receiver).

Regards,

=jbf=

B. Fisher