MSA-deep brain stimulation

[Guest guest]

Hi all: I know this has been discussed in the past, but my question is:

did dbs ever help anyone with MSA or only people with PD? Thanks in

advance for your answers. Regards, jerrie

[Guest guest]

Jerrie,

To my knowledge, it has never helped a MSA patient. It helps many PD

patients, especially with tremor. With PD they know the spot which

causes the tremor and can place eletrodes there to counter the tremor.

With MSA, several areas of the brain are problem areas and they do not

know how to help MSA symptoms. This MAY change in the future, but I

have not seen real doctors hopeful that it will help MSA.

Take care, Bill Werre

deenzer@... wrote:

>Hi all: I know this has been discussed in the past, but my question is:

>did dbs ever help anyone with MSA or only people with PD? Thanks in

>advance for your answers. Regards, jerrie

>

[Guest guest]

Just as a bit of encouragement. I have a friend who has young onset

Parkinson's who was a plumbing contractor but had to stop working. He has

Fetal tissue transplant several years ago when it was still available here in

Los Angeles, and he is just now beginning to see major improvements. He can

now perform some of the tests that even a year ago he could not do. He still

takes a lot of Sinemet and had disconaesia(sp?), but he no longer freezes and

is able to do some plumbing work. It will be very interesting to see how he

does in the future.

Barbara

[Guest guest]

Jerrie, They have in fact tried it for MSA but it didnt work.. It is only

good for People who actually have confirmed Parkinson's.

" tenacity's man "

>From: deenzer@...

>Reply-To: shydrager

>To: shydrager

>Subject: MSA-deep brain stimulation

>Date: Wed, 25 Sep 2002 22:30:12 -0400 (EDT)

>

>Hi all: I know this has been discussed in the past, but my question is:

>did dbs ever help anyone with MSA or only people with PD? Thanks in

>advance for your answers. Regards, jerrie

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Question - when dbs is successful in pd, does it really resolve any of

the

symptoms/effects of the pd beyond helping to lessen the dopamine related

symptoms that we all associate with classic pd? In other words, its not

as if the other issues of pd that are sometimes also prevalent in msa

are

alleviated or lessened, is it?

Jerry Cash

MSA-deep brain stimulation

>Date: Wed, 25 Sep 2002 22:30:12 -0400 (EDT)

>

>Hi all: I know this has been discussed in the past, but my question is:

>did dbs ever help anyone with MSA or only people with PD? Thanks in

>advance for your answers. Regards, jerrie

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Jerry,

DBS only takes care of the tremor, nothing else.. and it is not a cure, it

is kinda like a band aid.. while your waiting for the cure. How ever, their

is a time limit on it.. as they adjust the frequency to benifit the tremor,

it can only go so high and than your back to square one, But, the releif is

so wonderful, I have a friend here in Charlotte who had it done on both

sides back in Feb, you should see him , you would never know he even had

PD..

, " tenacity's man "

>

>Reply-To: shydrager

>To: shydrager >

>Subject: RE: MSA-deep brain stimulation

>Date: Thu, 26 Sep 2002 09:53:39 -0500

>

>Question - when dbs is successful in pd, does it really resolve any of

>the

>symptoms/effects of the pd beyond helping to lessen the dopamine related

>symptoms that we all associate with classic pd? In other words, its not

>

>as if the other issues of pd that are sometimes also prevalent in msa

>are

>alleviated or lessened, is it?

>

>Jerry Cash

>

> MSA-deep brain stimulation

> >Date: Wed, 25 Sep 2002 22:30:12 -0400 (EDT)

> >

> >Hi all: I know this has been discussed in the past, but my question is:

> >did dbs ever help anyone with MSA or only people with PD? Thanks in

> >advance for your answers. Regards, jerrie

> >

> >

> >If you do not wish to belong to shydrager, you may

> >unsubscribe by sending a blank email to

> >

> >shydrager-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

http://www.clevelandclinicmeded.com/deepbrain2/patientworksheethome.htm

Deep Brain Stimulation Therapy Patient Worksheet

The following worksheet consists of a number of questions to help the

physician or health care professional determine whether a particular patient

may be a good candidate for surgery for Parkinson's disease. If you have any

doubt whether the patient may be a good candidate or not, you might want to

consider referral to a center experienced in the surgical management of

patients with Parkinson's disease.

[Guest guest]

Jerrey, one other VERY IMPORTANT THING, before one actually has the DBS, he

or she should make ABSOLUTLY SURE they have PD. They should insist on

haveing an F-Dopa PET Scan. Than hopefully, there want be any other mistakes

made. At LONG ISLAND MEDICAL CENTER, they want concider a DBS with out it..

Make since doesnt it?????

" tenacity's man "

>

>Reply-To: shydrager

>To: shydrager >

>Subject: RE: MSA-deep brain stimulation

>Date: Thu, 26 Sep 2002 09:53:39 -0500

>

>Question - when dbs is successful in pd, does it really resolve any of

>the

>symptoms/effects of the pd beyond helping to lessen the dopamine related

>symptoms that we all associate with classic pd? In other words, its not

>

>as if the other issues of pd that are sometimes also prevalent in msa

>are

>alleviated or lessened, is it?

>

>Jerry Cash

>

> MSA-deep brain stimulation

> >Date: Wed, 25 Sep 2002 22:30:12 -0400 (EDT)

> >

> >Hi all: I know this has been discussed in the past, but my question is:

> >did dbs ever help anyone with MSA or only people with PD? Thanks in

> >advance for your answers. Regards, jerrie

> >

> >

> >If you do not wish to belong to shydrager, you may

> >unsubscribe by sending a blank email to

> >

> >shydrager-unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

We are getting there, aren't we Barb.. Just one day at a time..

" tenacity's man "

>From: kmcrae@...

>Reply-To: shydrager

>To: shydrager

>Subject: Re: MSA-deep brain stimulation

>Date: Thu, 26 Sep 2002 11:10:13 EDT

>

>Just as a bit of encouragement. I have a friend who has young onset

>Parkinson's who was a plumbing contractor but had to stop working. He has

>Fetal tissue transplant several years ago when it was still available here

>in

>Los Angeles, and he is just now beginning to see major improvements. He can

>now perform some of the tests that even a year ago he could not do. He

>still

>takes a lot of Sinemet and had disconaesia(sp?), but he no longer freezes

>and

>is able to do some plumbing work. It will be very interesting to see how he

>does in the future.

> Barbara

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Barb,

That is intersting as the Chinese studies showed slow improvment over

years also way back in the 1980's. But they stopped following after two

years as far as I know. What do his doctors say?

I note that California has passed a law allowing stem cell research.

Wonder what that will do to the Federal ban on it. Will Ashcroft send

his womb police into California (like his Oregon assisted death police)

;-) Note to all, I am NOT for assisted suicide myself, but recognize

the rights of those who want it - I would have understood if Charlotte

had wanted it - she did not.

Hope the guy continues to improve. Hope his doctors write it up.

Take care, Bill Werre

==========================

kmcrae@... wrote:

>Just as a bit of encouragement. I have a friend who has young onset

>Parkinson's who was a plumbing contractor but had to stop working. He has

>Fetal tissue transplant several years ago when it was still available here in

>Los Angeles, and he is just now beginning to see major improvements. He can

>now perform some of the tests that even a year ago he could not do. He still

>takes a lot of Sinemet and had disconaesia(sp?), but he no longer freezes and

>is able to do some plumbing work. It will be very interesting to see how he

>does in the future.

> Barbara

>

[Guest guest]

Bill:

i only know this one person who had the transplant when they were

available in Los Angeles (no, actually, I knew another but he died two years

later of a stroke). However, there are quite a few in our area who have had

the surgery since it was available here for a number if years. the team who

did it is gone, but I am sure someone will follow up and report since there

are so many of them and they do meet together once in a while.

Love, Barbara

[Guest guest]

Deep brain stimulation can help the symptom of tremor in SOME

patients with Parkinson disease. It is NOT currently recommended for

MSA. With MSA there are MULTIPLE areas of the brain affected so

there is not one specific target that DBS can help.

These sites can help explain what DBS is, what it does and how to

determine if you are a candidate for the surgery.

1. Deep Brain Stimulation for Parkinson's Disease:

Is It Right for Your Patient?

http://www.clevelandclinicmeded.com/deepbrain2/deepbrainhome.htm

2. Deep Brain Stimulation Therapy Patient Worksheet

http://www.clevelandclinicmeded.com/deepbrain2/patientworksheethome.ht

m

The following worksheet consists of a number of questions to help the

physician or health care professional determine whether a particular

patient may be a good candidate for surgery for Parkinson's disease.