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Roy, Angie and I received an email from a librarian looking for children's books on Relapsing Polychondritis. I know for a fact that there is no such book, so I was wondering if anyone knows of a book for children ranging in ages from 6-12 on autoimmune diseases.

All I can find is one book listed for grades 7-12 and I'm afraid that would be beyond these children's comprehension.

Any help is greatly appreciated.

W

, If this lady is a librarian then she should have all the resources to find the book if there is one. Wouldn't you think? I'm just curious?

Lu

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All I can find is one book listed for grades 7-12 and I'm afraid that would be beyond these children's comprehension.

Any help is greatly appreciated.

W

where did you look ?

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Good idea though. Maybe on down the road, we can come up with something like this, just for kids!!!

W

I agree, this is something we should consider doing. I started looking for something for her but I keep getting booted off tonight. lol

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Roy, Angie and I received an email from a librarian looking for children's books on Relapsing Polychondritis. I know for a fact that there is no such book, so I was wondering if anyone knows of a book for children ranging in ages from 6-12 on autoimmune diseases.

All I can find is one book listed for grades 7-12 and I'm afraid that would be beyond these children's comprehension.

Any help is greatly appreciated.

W

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Yes, but I think she was hoping we knew something maybe "off the wall" that isn't widely distributed.

Good idea though. Maybe on down the road, we can come up with something like this, just for kids!!!

W

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

, If this lady is a librarian then she should have all the resources to find the book if there is one. Wouldn't you think? I'm just curious? Lu

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In a message dated 8/20/01 3:58:56 PM Pacific Daylight Time,

susuw@... writes:

<< I know for a fact that there is no such book, so I was wondering if anyone

knows of a book for children ranging in ages from 6-12 on autoimmune diseases.

>>

, I will do some checking.... How about we write one!!!!! :) I'm game

if anyone else is...

I'll let you know what I can find... thanks for bringing this up.. It is very

important for children to know, especially if a family member has it.

Hopefully if we find one it won't be too scarey. Seems like we tend to

overlook the children at any age.

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Hi!! This my first reply to the group. I Have been reading the e-mails for

a couple months.

In regards to the request for info: Try the American Autoimmune and Related

Disease Association, Inc. www.aarda.org

It is a wonderful organization that has a very informative newsletter on

autoimmune diseases, research, etc. The letter is IN FOCUS.

They also have info on RP.

Best regards to all,

Marilyn Romagni

Savannah,

GA

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In a message dated 8/22/01 10:54:10 AM Pacific Daylight Time,

MRoma37617@... writes:

<< www.aarda.org

>>

Marilyn R, thanks for the site.... do you have RP? Let us know a little

about you. I'm sure you can enlighen us on some things... Welcome to the

group and just jump right in and give us your input.

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