Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Yes I read all of the article and it does offer hope. Why don't you ask him if there is anything specific we can do to help him. We could send a million letters of support to him but I don't see how that can speed things up. I asked Dr. Shults what we could do for him and he told me specifically... he needed volunteers and money. We got him the volunteers and right now it's in the NIH's hands whether he gets the money. I'm wondering since Celmed is a private company whether they are even eligible for NIH grants... I don't know how that works. Maybe you can ask him that as well. I notice that the parent company is Canadian and Celmed received $60 Million in capital loans from the Quebec government. I assume that was in US dollars so that's over $100 Million Canadian. Take care, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi Every one. In reference to Stem Cell's, About 2 months ago, there was a patition going around for Deborah to get an appointment with Dr Levesque in Los Angles Calif. As you all know, he gave her the same Dx as the last 8 or 9 Doctors had given her including Dr Jankovic in Huston Tx, with the exception of him giving her the Rx for the PET SCAN to be absolutly sure his Dx was in fact correct. Well, as you know, it turns out that in fact, she DOES NOT HAVE PD OR MSA and actually doing a great deal better now that she is off of all the PD meds. This is not to say she is healed but she is better. The reason I am writting you is that it would be really nice if all of you out there new about this great Doctor. He is doing his 2nd trail for the Stem Cell Transplant in 100 PD patients in Jan 03 and believe it or not,he told us when we saw him in July that he has permission to do ( first trial ) for one MSA patient. After you read the links that I have posted, and if you have the time, you might write, Fax or E-mail Dr Levesque in support of his NEW TECHNOLOGY and NEW TRIAL'S. He might really have the CURE. " tenacity's man " http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=3627 http://www.newswise.com/articles/2002/4/STEMCELL.CB2.html _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi , Maybe you can keep in contact with Dr. Levesque for all of us and pass along our support and ask for any updates we should know about. I wonder if the MSA patient who will receive this therapy is subscribed here. They can use our support as well as they head into this uncharted territory. Hugs, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 ; Just as a small addendum to your note. Dr. Levesque is well known in Southern California for the great work he is doing, and he was honored by the Parkinson's Resource Organization just this past week end here in Los Angeles. He is very enthusiastic about the possibility of using a person's own stem cells, and we all pray he is successful. Wouldn't it be a miracle if he could help even one MSA patient? Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Pam, If it is like his last experiment, you want know for at least a 2 years most likely, but perhaps because this is might be funded by the government, that might change. If they do it with their own money, than he might have that person sign a " gag order request " or what ever you might call it. Confidentiality agreement. Let us all just say a HUGE prayer that it WORKS, for all concerned. If you really read what he said in his article, the Stem Cells that he implanted worked on other parts of the brain which he didn't know it would. That is why he is going forward with a one person trial. How ever, with using the other 100 PD patients for his 2nd trial, he should be able to get very useful information and might be able to apply some of it to the MSA study as well. Who Knows, We just have to hope. " tenacity's man " > >Reply-To: shydrager >To: shydrager > >Subject: Re: Stem Cell Research >Date: Tue, 1 Oct 2002 21:25:55 -0300 > >Hi , > >Maybe you can keep in contact with Dr. Levesque for all of us and pass >along >our support and ask for any updates we should know about. I wonder if >the >MSA patient who will receive this therapy is subscribed here. They can use >our support as well as they head into this uncharted territory. > >Hugs, >Pam > > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 That is a very good question: " I'm wondering since Celmed is a private company whether they are even eligible " . You are probably right on the money Pam. I do know that he did PATTON his discovery before he joined Ceders Medical Center. I for got all about that. So in fact, it might just be the companys money or perhaps in joint venture with Ceder's. " tenacity's man " > >Reply-To: shydrager >To: shydrager > >Subject: Re: Stem Cell Research >Date: Sat, 23 Mar 2002 10:07:26 -0400 > >Yes I read all of the article and it does offer hope. Why don't you ask >him >if there is anything specific we can do to help him. We could send a >million letters of support to him but I don't see how that can speed things >up. I asked Dr. Shults what we could do for him and he told me >specifically... he needed volunteers and money. We got him the volunteers >and right now it's in the NIH's hands whether he gets the money. I'm >wondering since Celmed is a private company whether they are even eligible >for NIH grants... I don't know how that works. Maybe you can ask him that >as well. I notice that the parent company is Canadian and Celmed received >$60 Million in capital loans from the Quebec government. I assume that was >in US dollars so that's over $100 Million Canadian. > >Take care, >Pam > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 My mother-in-law suffered horribly and died from Lou Gehrig's disease (ALS) and my son's 13 months of life have been torture for him due to mitochondrial disease. I, for one, am hopeful that stem cell research will be allowed to happen, with some strict guidelines in place. It could end the suffering of many, many people with many different diseases. I have friends who did IVF and have leftover embryos that they would like to donate to research because they are not planning to use them and do not want them destroyed in vain. I think this should be a choice of the parents of those embryos, not politicians. Whitney Mom to --13 months, mitochondrial disease Complex I Quote Link to comment Share on other sites More sharing options...
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