Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 Marilyn R. So glad you finally posted. Please tell us more about yourself we love to get to know each other. How long have you had RP? OOP's maybe it is a relative that has it. Please let us get to know you! Thanks for the site. Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.265 / Virus Database: 137 - Release Date: 7/18/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 Hi Glenda I am 62 years old I have RP for atleast 12 to 14 years. I was diagnosed because of nasal problems. I had spontaneous reduction of my nasal septum. I have been treated throughout the years with Imuran. I also have glaucoma, osteoarthritis and Fibromyalgia. The fibro was diagnosed in 1980 or 81 when it was still called fibrositis. Recently (Jan/01) my rhuemy and I tried CELLCEPT because I was having flares. It is a long tale but I have not had a very good year so far. I do not want to bore you with all the details but would like to get to know the members of this group....thanks for your interest Marilyn/Savannah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 In a message dated 8/23/01 7:52:44 PM Pacific Daylight Time, MRoma37617@... writes: << I do not want to bore you with all the details but would like to get to know the members of this group....thanks for your interest Marilyn/Savannah >> Marilyn, you will never bore us with anything... This group likes to hear about it all. LOL Good, bad and ugly.. Please keep posting and asking all the questions you want... We have a great support group here and am glad that you found us... Can't wait to get to know you better... I am 49 and live in Calif. Have 3 daughters and a wonderful husband (and a grandaughter) Have been diagnosed with RP for 3 years... Seem to be doing okay now... Also have fibro, chronic fatigue, and a bunch of other boring stuff. LOL Please keep posting.... hugs C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2001 Report Share Posted August 23, 2001 Marilyn R. Wow it sounds like you have had your share as many have with this darn RP. You have had it for a long time. This year has been the pits for a lot of us. So glad you found us and we all care about each other. For one that is how we learn and for another it is like one big family here. I have been the group for about a year now and I feel like I have know them all forever. They are the greatest. Take care! We are all here for you anytime. Lots of Love Glenda BTW you never bore us! We like to hear about each other. Recently (Jan/01) my rhuemy and I tried CELLCEPT because I was having flares.It is a long tale but I have not had a very good year so far.I do not want to bore you with all the details but would like to get to know the members of this group....thanks for your interest Marilyn/Savannah ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.265 / Virus Database: 137 - Release Date: 7/18/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Dear Marilyn Welcome to the group. Sorry to hear you have RP and have had a bad year. Hope things will get better for you real soon. My name is also Marilyn, I live in eastern WA. Have had RP for quite a while, but was finally dx Feb. 2000. I am currently on metho and pred. You will find many new friends with this group and they will help with questions you have and be of great support. Love, Marilyn Hi Glenda I am 62 years old I have RP for atleast 12 to 14 years. I was > diagnosed because of nasal problems. I had spontaneous reduction of my nasal > septum. I have been treated throughout the years with Imuran. I also have > glaucoma, osteoarthritis and Fibromyalgia. The fibro was diagnosed in 1980 > or 81 when it was still called fibrositis. > > Recently (Jan/01) my rhuemy and I tried CELLCEPT because I was having flares. > It is a long tale but I have not had a very good year so far. > > I do not want to bore you with all the details but would like to get to know > the members of this group....thanks for your interest Marilyn/Savannah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Hi Marilyn R., Welcome to the RP list. Besides RP I also have Fibro., Glaucoma, Osteoarthritis, Diabetes and Vasculitis. Are you getting any help for your Fibro? Are you on Cellcept now? I am on Cytoxan and Pred. for the RP. Looking forward to getting to know you. Hugs, Sandy ----- Original Message ----- Hi Glenda I am 62 years old I have RP for atleast 12 to 14 years. I was diagnosed because of nasal problems. I had spontaneous reduction of my nasal septum. I have been treated throughout the years with Imuran. I also have glaucoma, osteoarthritis and Fibromyalgia. The fibro was diagnosed in 1980 or 81 when it was still called fibrositis.Recently (Jan/01) my rhuemy and I tried CELLCEPT because I was having flares.It is a long tale but I have not had a very good year so far.I do not want to bore you with all the details but would like to get to know the members of this group....thanks for your interest Marilyn/SavannahDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.