Re: Tingly or buggy feeling??

[Guest guest]

Sandy,

The tingly or buggy feeling is from the vasculitis? I get it too. Sometimes in ears and then in other places too.

Lots of Love

Glenda

Kim & ,

I have that sensation of bugs crawling under my skin and a stinging feeling.

This happens to me when my Vasculitis flares.

Sandy

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.265 / Virus Database: 137 - Release Date: 7/18/2001

[Guest guest]

Glenda,

I do get the buggy feeling in my ears.

I always get it in my feet when my Vasculitis flares.

I also get it on the upper rim of my top lip and my lip swells.

I figure there must be cartilage or connective tissue there.

Also, don't know if anyone else has experienced this, but my kids know when my nose is going to flare. I get a white circle surrounded by dark red right above the bridge of my nose right before a nose flare.

This darn disease is so bizzare.

Hugs,

Sandy

----- Original Message -----

Sandy,

The tingly or buggy feeling is from the vasculitis? I get it too. Sometimes in ears and then in other places too.

Lots of Love

Glenda

Kim & ,

I have that sensation of bugs crawling under my skin and a stinging feeling.

This happens to me when my Vasculitis flares.

Sandy

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.265 / Virus Database: 137 - Release Date: 7/18/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Sandy it's so good to have you back postin... Gosh I missed you... Hope

things are going okay for you.... Let us know... How is the cytoxin doing?

I'm praying it kicks in soon.... Know i love ya lots and can't wait to see

you soon.

hugs

[Guest guest]

In a message dated 8/24/01 6:39:27 AM Pacific Daylight Time,

biglou5685@... writes:

<< The time is getting close, if only I did not have to think about getting

on the plane. LOL See you very soon.

>>

Oh Sandy..... I know the feeling!!! already having nightmares. LOL

Geez.... the things we do for Mrs. NOSEY!!!! LOL How long is your flight?

Mine is 7 hours... Oh I better take my xanax. LOL The white knuckle express

here we come... All the hugs will be worht it.... Can't wait...

hugs

[Guest guest]

In a message dated 8/24/01 9:48:58 AM Pacific Daylight Time,

biglou5685@... writes:

<<

Our flight is about 3 1/2 hours. We fly to St. Louis, have an hour layover

then fly to Tulsa.

Two takeoffs and landings each way. Geez!!

>>

Sandy ours is the same.. We fly 4+ hours to Houston TX with 2 hour layover

then fly to tulsa 2+ hours.... I just hate the take offs and landings and

flying. LOL

claudia

[Guest guest]

,

Trying to post when I can, I finally caught up with my mail yesterday.

This is our County Fair week so we have been really busy. The kids

judgings are finally over so I have a little more free time now.

The time is getting close, if only I did not have to think about getting on the plane. LOL See you very soon.

Love Ya,

Sandy

Sandy it's so good to have you back postin... Gosh I missed you... Hope things are going okay for you.... Let us know... How is the cytoxin doing? I'm praying it kicks in soon.... Know i love ya lots and can't wait to see you soon. hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Sandy, I'm afraid of heights too... Just the thought of getting on a plane

sends me into a panic attack. LOL Have been on 3 or 4 flights and none were

good... One pilot at landing ran over all the runway lights.... thought that

was it.. LOL Another to Ohio was during a lightening storm... Not pleasant.

LOL and another was in a snow storm... Gee... hope I don't run into a

tornado this time. LOL

Gee I hope you get the okay.... What if you don't????? Guess I'll have to

come by car and pick you up... LOL Wish I could... Let's all just think

positive thoughts....

Sure hope heather doesn't need surgery.....Maybe they could do it in Ok. LOL

Things will be alot better tomorrow.. LOL know I'm thinking of you and tell

your daughter she's not alone... LOL

love ya

[Guest guest]

,

Our flight is about 3 1/2 hours. We fly to St. Louis, have an hour layover then fly to Tulsa.

Two takeoffs and landings each way. Geez!!

Love Ya,

Sandy

>>Oh Sandy..... I know the feeling!!! already having nightmares. LOL Geez.... the things we do for Mrs. NOSEY!!!! LOL How long is your flight? Mine is 7 hours... Oh I better take my xanax. LOL The white knuckle express here we come... All the hugs will be worht it.... Can't wait... hugs

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

<<,

I have not been in a plane since I was nineteen. We only vacation within reasonable driving distance. LOL I'm a chicken. One of my daughters is terrified of hights and she is coming with us.She is already nervous.

I am having balance problems and of course my hubby told the rheumy that I have been falling down and I am taking a plane trip and he's worried about my ears. My Rheumy said noway am I getting on a plane without seeing an ENT so his

nurse got me an "Emergency" appointment for Monday. I can see it now, me falling down in the aisles and my daughter having a major panic attack.LOL

Love Ya,

Sandy

>>Sandy ours is the same.. We fly 4+ hours to Houston TX with 2 hour layover then fly to tulsa 2+ hours.... I just hate the take offs and landings and flying. LOL claudia

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

How is doing today? Did she see the doctor this afternoon?

Sandy

Sandy, I'm afraid of heights too... Just the thought of getting on a plane sends me into a panic attack. LOL Have been on 3 or 4 flights and none were good... One pilot at landing ran over all the runway lights.... thought that was it.. LOL Another to Ohio was during a lightening storm... Not pleasant. LOL and another was in a snow storm... Gee... hope I don't run into a tornado this time. LOL Gee I hope you get the okay.... What if you don't????? Guess I'll have to come by car and pick you up... LOL Wish I could... Let's all just think positive thoughts....Sure hope heather doesn't need surgery.....Maybe they could do it in Ok. LOL Things will be alot better tomorrow.. LOL know I'm thinking of you and tell your daughter she's not alone... LOL love yaDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

--- Sandy Catalusci biglou5685@...> wrote:

> <

> I have not been in a plane since I was nineteen. We

> only vacation within reasonable driving distance.

> LOL I'm a chicken. One of my daughters is terrified

> of hights and she is coming with us.She is already

> nervous.

> I am having balance problems and of course my hubby

> told the rheumy that I have been falling down and I

> am taking a plane trip and he's worried about my

> ears. My Rheumy said noway am I getting on a plane

> without seeing an ENT so his

> nurse got me an " Emergency " appointment for Monday.

> I can see it now, me falling down in the aisles and

> my daughter having a major panic attack.LOL

>

> Love Ya,

> Sandy

>

>

>

>

> >>

> Sandy ours is the same.. We fly 4+ hours to Houston

> TX with 2 hour layover

> then fly to tulsa 2+ hours.... I just hate the take

> offs and landings and

> flying. LOL

>

> claudia

>

>

>

[Guest guest]

In a message dated 8/26/01 2:15:12 PM Pacific Daylight Time,

lizwizz2000@... writes:

<< Sandy - get a tranquilizer for your daughter if

she doesn't have one - and maybe one for you too! >>

Liz, think I'll take one too. LOL Make the flight a whole lot nicer. !!

hugs

[Guest guest]

In a message dated 8/26/01 7:24:58 PM Pacific Daylight Time,

biglou5685@... writes:

<< I will see what the ENT decides to do tomorrow. >>

Oh Sandy I HOPE he says it's okay to come... I can't wait to meet you.. Let

us know what happens..

hugs

[Guest guest]

Liz,

Looking forward to seeing you too. I wish I could have found a direct flight.

I will see what the ENT decides to do tomorrow.

I'll let you know what he decides to do.

Love Ya,

Sandy

> > > > > > >

[Guest guest]

Hi ,

Saw the ENT and I have a nasal spray that I have to use 1 hour before takeoff. I'll be there, I figure if I have a problem with my balance there are enough people around to pick me up. LOLOL

I do have to go to the Cleve. Clinic in Sept. for tests for vertigo. Had my hearing tested today and had some loss of high tones and low tones but nothing serious.

See you soon!!!

Love Ya,

Sandy

<< I will see what the ENT decides to do tomorrow. >>Oh Sandy I HOPE he says it's okay to come... I can't wait to meet you.. Let us know what happens.. hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

In a message dated 8/27/01 4:17:39 PM Pacific Daylight Time,

biglou5685@... writes:

<< ad my hearing tested today and had some loss of high tones and low tones

but nothing serious.

See you soon!!! >>

Sandy, sooo glad that you got the okay to come.... Oh Gee I can hardly

wait..... What kind of nasal spray do you use... ?

On my last hearing test, I lost some of the low tones... They said the high

tones usually are the first to go.... guess we are different there too.LOL

Please take care and stay well for this weekend.... I had to up my pred by

1mg today... It took care of the pain in my ear... so that made me happy, but

not happy about upping the pred... Oh well, guess you can't have everything.

LOL

I'm just soo glad you are coming.... See you this weekend..

LOTS of hugs and prayers that you stay well.

[Guest guest]

In a message dated 8/27/01 4:17:39 PM Pacific Daylight Time,

biglou5685@... writes:

<< ad my hearing tested today and had some loss of high tones and low tones

but nothing serious.

See you soon!!! >>

Sandy, sooo glad that you got the okay to come.... Oh Gee I can hardly

wait..... What kind of nasal spray do you use... ?

On my last hearing test, I lost some of the low tones... They said the high

tones usually are the first to go.... guess we are different there too.LOL

Please take care and stay well for this weekend.... I had to up my pred by

1mg today... It took care of the pain in my ear... so that made me happy, but

not happy about upping the pred... Oh well, guess you can't have everything.

LOL

I'm just soo glad you are coming.... See you this weekend..

LOTS of hugs and prayers that you stay well.

[Guest guest]

,

The ENT gave me Afrin. He said he's sure it will work. I hope so.

See you in a couple of days. I am getting so excited.

Hugs,

Sandy

Sandy, sooo glad that you got the okay to come.... Oh Gee I can hardly wait..... What kind of nasal spray do you use... ? On my last hearing test, I lost some of the low tones... They said the high tones usually are the first to go.... guess we are different there too.LOL Please take care and stay well for this weekend.... I had to up my pred by 1mg today... It took care of the pain in my ear... so that made me happy, but not happy about upping the pred... Oh well, guess you can't have everything. LOL I'm just soo glad you are coming.... See you this weekend.. LOTS of hugs and prayers that you stay well.

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

The ENT gave me Afrin. He said he's sure it will work. I hope so.

See you in a couple of days. I am getting so excited.

Hugs,

Sandy

Sandy, sooo glad that you got the okay to come.... Oh Gee I can hardly wait..... What kind of nasal spray do you use... ? On my last hearing test, I lost some of the low tones... They said the high tones usually are the first to go.... guess we are different there too.LOL Please take care and stay well for this weekend.... I had to up my pred by 1mg today... It took care of the pain in my ear... so that made me happy, but not happy about upping the pred... Oh well, guess you can't have everything. LOL I'm just soo glad you are coming.... See you this weekend.. LOTS of hugs and prayers that you stay well.

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

In a message dated 8/28/01 7:07:45 AM Pacific Daylight Time,

biglou5685@... writes:

<< The ENT gave me Afrin. He said he's sure it will work. I hope so.

See you in a couple of days. I am getting so excited.

>>

I'm so excited too Sandy.... so much that I can't get anything done....(yeah

right, just a good excuse...) lOL But it will all be done by the time i'm

suppose to leave...

See ya soon.

hugs

[Guest guest]

In a message dated 8/28/01 7:07:45 AM Pacific Daylight Time,

biglou5685@... writes:

<< The ENT gave me Afrin. He said he's sure it will work. I hope so.

See you in a couple of days. I am getting so excited.

>>

I'm so excited too Sandy.... so much that I can't get anything done....(yeah

right, just a good excuse...) lOL But it will all be done by the time i'm

suppose to leave...

See ya soon.

hugs

[Guest guest]

In a message dated 8/28/01 2:38:56 PM Pacific Daylight Time,

biglou5685@... writes:

<< Figure if I keep up this pace by the time I get on the plane I'll pass

out, YES PLEASE!!! LO >>

Oh Sandy, it's almost 5pm here and I STILL haven't gotten anything done..

HELP!!!! Hopefully I will just pass out too.... LOL

hugs

[Guest guest]

In a message dated 8/28/01 2:38:56 PM Pacific Daylight Time,

biglou5685@... writes:

<< Figure if I keep up this pace by the time I get on the plane I'll pass

out, YES PLEASE!!! LO >>

Oh Sandy, it's almost 5pm here and I STILL haven't gotten anything done..

HELP!!!! Hopefully I will just pass out too.... LOL

hugs

[Guest guest]

,

I'm trying to clean my house before I go. Spent the last 9 days at our county fair so I'm way behind. I have different shifts of people coming in to take care of our 30 some animals and I don't want them to think we live in a hovel. LOL

Still trying to get my last sundress finished, yes I'm still working on my summer clothes. LOL

Figure if I keep up this pace by the time I get on the plane I'll pass out, YES PLEASE!!! LOL

Love Ya,

Sandy

----- Original Message ----- See you in a couple of days. I am getting so excited. >>I'm so excited too Sandy.... so much that I can't get anything done....(yeah right, just a good excuse...) lOL But it will all be done by the time i'm suppose to leave... See ya soon. hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

I'm trying to clean my house before I go. Spent the last 9 days at our county fair so I'm way behind. I have different shifts of people coming in to take care of our 30 some animals and I don't want them to think we live in a hovel. LOL

Still trying to get my last sundress finished, yes I'm still working on my summer clothes. LOL

Figure if I keep up this pace by the time I get on the plane I'll pass out, YES PLEASE!!! LOL

Love Ya,

Sandy

----- Original Message ----- See you in a couple of days. I am getting so excited. >>I'm so excited too Sandy.... so much that I can't get anything done....(yeah right, just a good excuse...) lOL But it will all be done by the time i'm suppose to leave... See ya soon. hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU