Re: Tingly or buggy feeling??/Sandy

[Guest guest]

I do get the buggy feeling in my ears.

I always get it in my feet when my Vasculitis flares.

I also get it on the upper rim of my top lip and my lip swells.

I figure there must be cartilage or connective tissue there.

Also, don't know if anyone else has experienced this, but my kids know when my nose is going to flare. I get a white circle surrounded by dark red right above the bridge of my nose right before a nose flare.

This darn disease is so bizzare.

Hi Sandy,

Can you describe this feeling with another word? I think I get it too but I don't know if I would call it buggy? I don't know what you would call it? lol Oh I'm so tired. I know I shouldn';t say so. You have more reason to be tired than me. I can't wait to meet you in Okieland.

Love u

Lu

[Guest guest]

Hi Lu,

It's a feeling like something is crawling under my skin and stinging me.

It's like a painful tingling sensation. I know that tired feeling, I've been so tired since I started the Cytoxan. Teusday I went up to 75mg. a day.

My Rheumy is going to up it in 3 weeks if my bloodwork is okay. He

is hoping I'll get some results once he gets it up to 100mg. a day.

It's my Vasculitis that has been driving me crazy lately.

I can't wait to see you.

Love Ya,

Sandy

Hi Sandy, Can you describe this feeling with another word? I think I get it too but I don't know if I would call it buggy? I don't know what you would call it? lol Oh I'm so tired. I know I shouldn';t say so. You have more reason to be tired than me. I can't wait to meet you in Okieland. Love u Lu DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Okay Sandy,

I'm going to be praying that your flight will go great and that you will not be nervous or your daughter. Hope the doc can give you something to calm your nerves. If not they sell something in the airport that actually works better for me. But I can't think of the name of it. But they will know. Take it before you board. Tell them you have an illness and need to board early, they will put you on first and get you off first. that will help a lot. I can't wait to finally meet you, and give you a big hug.

Have a safe trip, I'll see you in Okieland.

Love you

Lu

> without seeing an ENT so his

> nurse got me an "Emergency" appointment for Monday.

> I can see it now, me falling down in the aisles and

> my daughter having a major panic attack.LOL

> > Love Ya,

> Sandy

[Guest guest]

Oh sweet Sandy, I have been thinking of you too. Keeping you in my prayers. Can you believe we will finally get to meet???? I can't wait.

I love u

Lu

Lu,

Thanks for the info. You have a safe trip too. Been thinking about you often, knowing we will be seeing each other soon!!

Love Ya,

Sandy

[Guest guest]

Oh sweet Sandy, I have been thinking of you too. Keeping you in my prayers. Can you believe we will finally get to meet???? I can't wait.

I love u

Lu

Lu,

Thanks for the info. You have a safe trip too. Been thinking about you often, knowing we will be seeing each other soon!!

Love Ya,

Sandy

[Guest guest]

Lu,

Thanks for the info. You have a safe trip too. Been thinking about you often, knowing we will be seeing each other soon!!

Love Ya,

Sandy

Okay Sandy, I'm going to be praying that your flight will go great and that you will not be nervous or your daughter. Hope the doc can give you something to calm your nerves. If not they sell something in the airport that actually works better for me. But I can't think of the name of it. But they will know. Take it before you board. Tell them you have an illness and need to board early, they will put you on first and get you off first. that will help a lot. I can't wait to finally meet you, and give you a big hug. Have a safe trip, I'll see you in Okieland. Love you Lu

> without seeing an ENT so his > nurse got me an "Emergency" appointment for Monday. > I can see it now, me falling down in the aisles and > my daughter having a major panic attack.LOL > > Love Ya, > Sandy DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU