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Re: Digest Number 1936

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Marie-pia

I'm soooo sorry to hear about your children. Do

you have any idea why they have RP (what do the

doctors say?)

Group: Isn't Dr. Buckner interested in blood

relatives who have RP?

I don't know her email, but I think you might

find it helpful if you email her about your

special predicament. Can someone in the group

provide Marie-pia with the email address?

Again, so sorry to hear about your children...

--- Rpolychondritis wrote:

>

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