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Re: -Cathy D.

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Cathy,

So glad you found us! What a welcome addition!

Thanks for keeping us on our toes!

Is it you that thinks you might have RP too? At least

you are more aware of what is going on now. Too bad

your Dad wasn't diagnosed earlier. I will be sending

good thoughts and prayers your way that all works out

well for the both of you!

Lots of Love

Glenda

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Glenda,

It is me that wonders if I have it also. I lost the hearing in one ear a couple of years ago for no reason. The ear didn't swell, just the loss. I saw my ENT for a checkup Friday and he said it could be...just no way to know unless another episode of something related comes up in the future. Hopefully I am just writing about Dad and not me. But at least I have something to look for and will take immediate action if something comes up. Talked to Dad's PCP and he still doesn't know where to send us. Will wait awhile and then I think I'll start calling Rheumatologists and see who, if any, know of this. Cathy

Re: -Cathy D.

Cathy,So glad you found us! What a welcome addition! Thanks for keeping us on our toes! Is it you that thinks you might have RP too? At leastyou are more aware of what is going on now. Too badyour Dad wasn't diagnosed earlier. I will be sendinggood thoughts and prayers your way that all works outwell for the both of you!Lots of LoveGlenda__________________________________________________

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Cathy

It is not really finding one that knows about the RP but one that will look further into it. That is what you need one that will really work with you. Good luck! I really hope you don't have it! Sending good thoughts and prayers your families way.

Lots of Love

Glenda

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