So good to share our concerns.

[Guest guest]

Hi All!

I am somewhat overwhelmed by the volume of e-mails each day but I shall have

to adjust to it! Some times I am not at the computer for three of four days

in a row.

I am no longer on the CellCept. I asked my doc to put me back on the Imuran

two weeks ago and am feeling better now. In addition to the RP and other

things I mentioned before I have a multitude of allergies and mild asthma. I

am a walking drug store.

I had a newly graduated doc tell me that they are not taught about RP in med

school any more. The name has been changed to " mixed connective tissue

disease. " Has

anyone else run into that??

The goal of my rheumy is to keep me off prednisone on a daily basis as long

as possible. I have used it during flares. I lost some of my hearing a few

years ago and that restored it. My first external ear flare occurred this

summer. It too responded to a steroid injection.

Enough for this time. I'll tell you about my family another time.

Have a great day!

Marilyn R/Savannah

[Guest guest]

Marilyn,

Love your description of your self. I refer to myself as a Toxic Waste Site. LOL

Sandy

I am a walking drug store.Have a great day!Marilyn R/Savannah

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU