Guest guest Posted August 26, 2001 Report Share Posted August 26, 2001 HAPPY HAPPY BIRTHDAY ARTO MY DEAR FRIEND!!! Hope it's your best one ever. How old are you now?????????? Same age as me I believe!! LOL Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 Hi Arto, Happy Belated Birthday! Sorry I missed it! I hope you had a wonderful birthday. Love you! Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Heippa! Many thanks for remembering me and my birthday / Viele Danken fuer mir gratulieren! I haven´t left you totally, I´m still lurking, but I´m very good in defering various things, including writing to the list. I stopped taking Thalidomide in May for some signs of neuropathy. I should begin trying Arava, but have delayed it for flue and some dental problems. Some of you have tried Arava, but it´s not widely used - is it so? You must have a very exciting time when waiting your first meeting in Tulsa. Are you already counting down? We don´t have our traditional RP-meeting this year, but a local meeting for people with rare diseases. Herewith I´m sad to tell, that a member of our group, Pia Peltonen, passed away on the 9th of August. She was 58 yrs, and had husband Eino and two grown up daughters. We had a very warm summer and it´s still quite warm, so our fall may come abruptly. Voikaa hyvin! Terveisin, Arto Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Heippa! Many thanks for remembering me and my birthday / Viele Danken fuer mir gratulieren! I haven´t left you totally, I´m still lurking, but I´m very good in defering various things, including writing to the list. I stopped taking Thalidomide in May for some signs of neuropathy. I should begin trying Arava, but have delayed it for flue and some dental problems. Some of you have tried Arava, but it´s not widely used - is it so? You must have a very exciting time when waiting your first meeting in Tulsa. Are you already counting down? We don´t have our traditional RP-meeting this year, but a local meeting for people with rare diseases. Herewith I´m sad to tell, that a member of our group, Pia Peltonen, passed away on the 9th of August. She was 58 yrs, and had husband Eino and two grown up daughters. We had a very warm summer and it´s still quite warm, so our fall may come abruptly. Voikaa hyvin! Terveisin, Arto Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Arto Toikka wrote: Some of you have tried Arava, but it´s not widely used - is it so?Hi Arto, Sharon here. I have been on Arava for several months. It does seem to help quite a bit with the joint pain that I have. Hope it will work for you. I don't know how widely used it is because it is still a fairly new drug. They have a website, just look up Arava. Good luck, SharonDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Arto Toikka wrote: Some of you have tried Arava, but it´s not widely used - is it so?Hi Arto, Sharon here. I have been on Arava for several months. It does seem to help quite a bit with the joint pain that I have. Hope it will work for you. I don't know how widely used it is because it is still a fairly new drug. They have a website, just look up Arava. Good luck, SharonDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Heippa Arto!! So good to hear from you again.. You make us worry about you being gone so long.... Hope you are feeling better soon.... We are having such a hot summer here too... will be glad when fall gets here. You post when you can and keep us updated Arto... We miss you my friend. sending lots of hugs your way Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Heippa Arto!! So good to hear from you again.. You make us worry about you being gone so long.... Hope you are feeling better soon.... We are having such a hot summer here too... will be glad when fall gets here. You post when you can and keep us updated Arto... We miss you my friend. sending lots of hugs your way Quote Link to comment Share on other sites More sharing options...
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