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Re: Digest Number 1947

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In a message dated 8/26/01 9:56:35 PM Pacific Daylight Time,

hiacynth1@... writes:

<< So while my RP may

start to feel better, I may start to feel worse

too because of the side effects.... >>

, I think you've hit the nail on the head... As far as the

dream,,Maybe it was a hint to try the ice. LOL Who knows.... dreams can

mean the darndest things.

Hope you can find some relief soon....

hugs

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" All the treatments take time to kick in so

sometimes you have to wait, then you find out

this med isn't working so you have to start over,

it is not simple to control it, but it can be

done. "

Thanks Liz,

OK, so now it's starting to make sense to me.

I've been told that with the MTX, it can take

anywhere from 6 wks to 3 months for it to start

kicking in. I thought it referred to the pills

HELPING the symptoms, but apparently the side

effects also go hand-in-hand. So while my RP may

start to feel better, I may start to feel worse

too because of the side effects....

Sandy,

Thanks for telling me about your injectible MTX

not making you nauseous. How much do you take a

wk? I can't stand the headaches (I used to have

bad migraines all the time when I was 10 years

old), but sometimes I'll wait longer than normal

to complain... the silver lining in all of this

is I get the headaches on Saturday even though I

start MTX on Tuesday. If I got headaches the next

day, I wouldn't be able to go to work abd that

would be bad since I work Mon/Wed/Fri.

Marilyn,

Good luck with your MTX increase. Looks like

we're following a parallel path here. Good to

know that we're " partners " in our MTX regimen.

I'll try the ice on the back of my head when I

get that headache next time, claudia. Funny that

I was dreaming of having fallen in snow and not

able to get up (I remember particularly that the

back of my head was on ice...this caused me in

real life to get up because of breathing

problems. I woke up Sat. morning thinking the

snow dream caused my headache because I was

probably holding my breath...). Nothing

correlates here but seems to come, in some weird

way, into full circle... hyuck!

=====

When choosing the lesser of two evils,

I always like the one I haven't tried.

-- Mae West

__________________________________________________

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,

I was on .8cc of Metho a week.

I was on Cyclosporine at the same time.

Neither med worked for me so I have been off the Metho for 7 weeks. I am now on Cytoxan.

Just a note to anyone who may go off Metho.

After being off Metho for 3 weeks my PCP told me I did not have to take the Folic acid anymore,

within 2 weeks of stopping the Folic acid I had a mouth full of sores. I'm back on it again and the sores are gone. My Rheumy said it takes a long time for the effects of the Metho to get out of your system.

Hugs,

Sandy

Sandy,Thanks for telling me about your injectible MTXnot making you nauseous. How much do you take awk? I can't stand the headaches (I used to havebad migraines all the time when I was 10 yearsold), but sometimes I'll wait longer than normalto complain... the silver lining in all of thisis I get the headaches on Saturday even though Istart MTX on Tuesday. If I got headaches the nextday, I wouldn't be able to go to work abd thatwould be bad since I work Mon/Wed/Fri. Marilyn,Good luck with your MTX increase. Looks likewe're following a parallel path here. Good toknow that we're "partners" in our MTX regimen.I'll try the ice on the back of my head when Iget that headache next time, claudia. Funny thatI was dreaming of having fallen in snow and notable to get up (I remember particularly that theback of my head was on ice...this caused me inreal life to get up because of breathingproblems. I woke up Sat. morning thinking thesnow dream caused my headache because I wasprobably holding my breath...). Nothingcorrelates here but seems to come, in some weirdway, into full circle... hyuck!=====When choosing the lesser of two evils,I always like the one I haven't tried. -- Mae West__________________________________________________

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