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Re: SCD worked but still opting for surgery due to Colitis

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Sorry, one other point:

I just wanted to say it's not all doom and gloom but rather lessons learned. In spite of all the physical pain, I've had some great times in spite of the illness! And I look forward to my upcoming surgery. And again, the SCD was great.>> Hi everyone, Just wanted to say that after trying every mode of therapy> for my colitis, nothing seems to work anymore and I'm opting for> surgery. I wish I had taken the illness more seriously and treated it> more aggressively when it was in its earlier, less aggressive stages.> For anyone who wishes to learn from my mistakes, I invite you to learn> as much as possible so you can avoid the mistakes I made. I've done it> all from fecal infusions to LDN and documented it. The SCD was the> best of all but I didn't stick to it rigorously after the first 5 months> and things went downhill very quickly from there. > http://steven-asecondchance.blogspot.com/2009/08/low-dose-naltextrone-sp\> ecific.html> <http://steven-asecondchance.blogspot.com/2009/08/low-dose-naltextrone-s\> pecific.html> and> http://steven-asecondchance.blogspot.com/2009/08/advice-for-anyone-with-\> ibd-crohns-or.html> <http://steven-asecondchance.blogspot.com/2009/08/advice-for-anyone-with\> -ibd-crohns-or.html>> Best wishes to my fellow Crohn's/Colitis sufferers and I wish that my> experiences may be of use to you, >

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At 10:29 AM 10/27/2009, you wrote:

And again, the SCD was

great.

And many people who have still needed surgery use SCD as a tool to not

have more surgery.

Luck to you -- surgery isn't fun, nor is the healing, but feeling better

after is!

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

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Are you going to continue the SCD after surgery? All the folks

who have had surgery on this list recommend broths, soups and easy to digest

foods afterwards, like the intro diet. You said you stopped adherence to the

SCD after 5 months. Why did you stop? If you have read BTVC it is recommended

to be on the diet with strict, fanatical adherence for 1-2 years. Otherwise you

feed bad bacteria, yeasts & molds and they become stronger and more

difficult to eradicate. Just sayin’.

Best of luck with the surgery – I hope you find relief and

healing!

Carol

CD 21 yrs SCD 5 yrs B12 shots & LDN cream

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of s6384365

I just wanted to say it's not all doom and gloom but

rather lessons learned. In spite of all the physical pain, I've had some

great times in spite of the illness! And I look forward to my upcoming

surgery. And again, the SCD was great.

>

> Hi everyone, Just wanted to say that after trying every mode of therapy

> for my colitis, nothing seems to work anymore and I'm opting for

> surgery. I wish I had taken the illness more seriously and treated it

> more aggressively when it was in its earlier, less aggressive stages.

> For anyone who wishes to learn from my mistakes, I invite you to learn

> as much as possible so you can avoid the mistakes I made. I've done it

> all from fecal infusions to LDN and documented it. The SCD was the

> best of all but I didn't stick to it rigorously after the first 5 months

> and things went downhill very quickly from there.

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I am sorry to hear you have come to this, and sincerely hope the surgery brings

you relief. You stated that you have made mistakes, but you should not blame

yourself for your illness. At this point, support and good wishes are what you

need :)

I agree with Carol to give SCD a try even with surgery. As you know, you will

need much healing and will still have some intestinal tissue left- to keep

healthy.

Best wishes,

PJ

> >

> > Hi everyone, Just wanted to say that after trying every mode of therapy

> > for my colitis, nothing seems to work anymore and I'm opting for

> > surgery. I wish I had taken the illness more seriously and treated it

> > more aggressively when it was in its earlier, less aggressive stages.

> > For anyone who wishes to learn from my mistakes, I invite you to learn

> > as much as possible so you can avoid the mistakes I made. I've done it

> > all from fecal infusions to LDN and documented it. The SCD was the

> > best of all but I didn't stick to it rigorously after the first 5 months

> > and things went downhill very quickly from there.

>

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Good Luck, this is not the end of your illness...nor is it time to give up scd,

or a yeast-elimination plan. Whether you use scd, gaps, bee's website, or

whatever works for you...do something to maintain health. I had colorectal

cancer at 29, had surgery, am here to talk about it today...and am now healing

my whole family with a combination of the above programs to suit us. This is

not your end, it is your beginning.

Just my 2 cents. Go get em. :)

Anne G

>

> Hi everyone, Just wanted to say that after trying every mode of therapy

> for my colitis, nothing seems to work anymore and I'm opting for

> surgery. I wish I had taken the illness more seriously and treated it

> more aggressively when it was in its earlier, less aggressive stages.

> For anyone who wishes to learn from my mistakes, I invite you to learn

> as much as possible so you can avoid the mistakes I made. I've done it

> all from fecal infusions to LDN and documented it. The SCD was the

> best of all but I didn't stick to it rigorously after the first 5 months

> and things went downhill very quickly from there.

> http://steven-asecondchance.blogspot.com/2009/08/low-dose-naltextrone-sp\

> ecific.html

> http://steven-asecondchance.blogspot.com/2009/08/low-dose-naltextrone-s\

> pecific.html> and

> http://steven-asecondchance.blogspot.com/2009/08/advice-for-anyone-with-\

> ibd-crohns-or.html

> http://steven-asecondchance.blogspot.com/2009/08/advice-for-anyone-with\

> -ibd-crohns-or.html>

> Best wishes to my fellow Crohn's/Colitis sufferers and I wish that my

> experiences may be of use to you,

>

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*waves hand*

I had surgery in September, but won't quit SCD anytime soon.

Good luck with your surgery ! Oh, and your birdie is a cutie! My little

one is frustrated at my lack of gurging skills too ;-).

Holly

Crohn's

SCD 12/01/08

> >And again, the SCD was great.

>

> And many people who have still needed surgery use

> SCD as a tool to not have more surgery.

>

> Luck to you -- surgery isn't fun, nor is the

> healing, but feeling better after is!

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

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