Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 My son had been doing really well until a few weeks ago when his bleeding (from UC) started to get worse. I thought it would get better, but it hasn't. He hasn't really cheated, but I know that he's eating more advanced foods than he should. He often buys apples at school and has eaten some coconut (actually, a large amount) and has been eating Lara Bars and other dried fruit. Since he's 14, I can't watch every single bite that goes into his mouth, but I'm trying to make enough simple foods for him that he doesn't feel the need to branch out when I'm not around. He hasn't eaten anything that isn't on the diet, just stuff that he shouldn't be eating now. He can't do dairy, so the yogurt is out. The probiotics give him a bad stomach ache, so he fights taking those, but I'm trying to get him to take them every other day to see if he can build some tolerance. I'm sure this would help him. Is there something better than SCDophilus? The other thing that has changed is that he started using cortisone enemas. They haven't really helped and they seem to cause a very unpleasant side effect - wetting the bed, which he outgrew quite a while ago. So he doesn't want to do them anymore, which I understand. I think we're going to go back to a modified intro for a few days. Chicken soup, applesauce, bananas, cooked carrots, hamburger patties. Does anyone have any other suggestions? He has a stool test kit that he needs to do to see what all is going on down there and that will give some good information, but he has to actually do it! I'm thinking about asking his GI Doc about LDN at his appointment in December. Someone suggested MSM too, but I've never seen it discussed anywhere. Thanks, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 The probiotics give him a bad stomach ache, so he fights taking those, but I'm trying to get him to take them every other day to see if he can build some tolerance. I'm sure this would help him. Is there something better than SCDophilus?What about trying something like fermented cabbage juice? Mara just posted a link to pecanbread's recipe, and you just make the sauerkraut like normal but only drink the juice. That would be a good source of probiotics, and I've heard of many people who have "cured" their UC from drinking cabbage juice. I know it's high in L-glutamine, which helps heal the intestines. I'm planning on trying this soon..it was gonna be today, but I came down with the flu =( When I try it though I'll let you know how it goes! Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 I've made Russian style sauerkraut several times and can't ever get him to even try it. Maybe if he knows it can help him, he might. I actually love it! My younger son is adopted from Russia and he loves it too. Good idea, definitely worth a try. Liz > > > The probiotics give him a bad stomach ache, so he fights taking > > those, but I'm trying to get him to take them every other day to see > > if he can build some tolerance. I'm sure this would help him. Is > > there something better than SCDophilus? > > > What about trying something like fermented cabbage juice? Mara just > posted a link to pecanbread's recipe, and you just make the sauerkraut > like normal but only drink the juice. That would be a good source of > probiotics, and I've heard of many people who have " cured " their UC > from drinking cabbage juice. I know it's high in L-glutamine, which > helps heal the intestines. I'm planning on trying this soon..it was > gonna be today, but I came down with the flu =( When I try it though > I'll let you know how it goes! > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 He can't do dairy, so the yogurt is out. The probiotics give him a bad stomach ache, so he fights taking those, but I'm trying to get him to take them every other day to see if he can build some tolerance. I'm sure this would help him. Is there something better than SCDophilus? My understanding is that SCDophilus is pretty strong. Which we want but for now if that causes problems and understandable resistance, could you get him a milder L. Acidophilus? And kind of work it up in amount back to the SCDophilus? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 I've made Russian style sauerkraut several times and can't ever get him to even try it. Maybe if he knows it can help him, he might. I actually love it! My younger son is adopted from Russia and he loves it too. Good idea, definitely worth a try. Liz Maybe you can get him to accept it as medicine, not food. Even just a little ought to help and then perhaps he can get used to a little more, etc. A neighbor of ours years ago cured an ulcer with straight cabbage juice. I think cabbage products are generally good for the gut. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 > I've made Russian style sauerkraut several times and can't ever get > him to even try it. Maybe if he knows it can help him, he might. I > actually love it! My younger son is adopted from Russia and he loves > it too. Good idea, definitely worth a try. Liz, how is Russian style different? Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 > Liz, how is Russian style different? > It's more like a salad. You shred cabbage, carrots and green apples and add salt and water and leave it out on the counter to ferment for 3-5 days. It ends up like slightly wilted cabbage salad with a vinegar dressing. I modified a recipe from Nourishing Traditions. When we were in Russia we ate similar cabbage salads. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 Hi, I am from Russia and we were putting whole apples, no cutting on the bottom and then mixture with cabbage and carrots - these apples are very delish... , son 12 y/o UC 11/06, SCD 11/07, ah - bleeding, no meds. Subject: Re: Going backwards...To: BTVC-SCD Date: Sunday, November 1, 2009, 4:00 PM > Liz, how is Russian style different?> It's more like a salad. You shred cabbage, carrots and green apples and add salt and water and leave it out on the counter to ferment for 3-5 days. It ends up like slightly wilted cabbage salad with a vinegar dressing. I modified a recipe from Nourishing Traditions. When we were in Russia we ate similar cabbage salads.Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Since your son can't do dairy, how about making nut or coconut yogurt? Also, maybe he could try taking a smaller amount of the probiotic (like half a capsule) to see if he can build up a tolerance to it. Holly Crohn's SCD 12/01/08 > > My son had been doing really well until a few weeks ago when his bleeding (from UC) started to get worse. I thought it would get better, but it hasn't. He hasn't really cheated, but I know that he's eating more advanced foods than he should. He often buys apples at school and has eaten some coconut (actually, a large amount) and has been eating Lara Bars and other dried fruit. Since he's 14, I can't watch every single bite that goes into his mouth, but I'm trying to make enough simple foods for him that he doesn't feel the need to branch out when I'm not around. He hasn't eaten anything that isn't on the diet, just stuff that he shouldn't be eating now. > > He can't do dairy, so the yogurt is out. The probiotics give him a bad stomach ache, so he fights taking those, but I'm trying to get him to take them every other day to see if he can build some tolerance. I'm sure this would help him. Is there something better than SCDophilus? > > The other thing that has changed is that he started using cortisone enemas. They haven't really helped and they seem to cause a very unpleasant side effect - wetting the bed, which he outgrew quite a while ago. So he doesn't want to do them anymore, which I understand. > > I think we're going to go back to a modified intro for a few days. Chicken soup, applesauce, bananas, cooked carrots, hamburger patties. Does anyone have any other suggestions? He has a stool test kit that he needs to do to see what all is going on down there and that will give some good information, but he has to actually do it! I'm thinking about asking his GI Doc about LDN at his appointment in December. Someone suggested MSM too, but I've never seen it discussed anywhere. > > Thanks, > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 > Since your son can't do dairy, how about making nut or coconut yogurt? I don't think I could find any more time to make something that complicated. If I could use canned coconut milk or premade nut milk I might be able to swing it, but I'm actually relieved that he can't have yogurt because it's one less thing I have to do. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 actually nut is quicker and easier than goat/cow - take nut flour 1 1/3 cups, add water to get it to 4-5 cup line blend for 10 minutes add starter - leaqve in yog maker or oven with 60 watt bulb for 8 hours chill in fridge 6-8 hours drain and there you go - sounds worse than it is - most add honey 2tblspn to blender i give plain to son due to yeast or add van or cinn or lil cooked granny smith apples eileen 21 months scd -son 5 weeks scd > > > > > Since your son can't do dairy, how about making nut or coconut yogurt? > > I don't think I could find any more time to make something that complicated. If I could use canned coconut milk or premade nut milk I might be able to swing it, but I'm actually relieved that he can't have yogurt because it's one less thing I have to do. > > Liz > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.