RE: On Teachers response/CARRIE

[Guest guest]

I am so sorry to hear of such an awful experience you and your daughter had. Although I am one who wrote that we need to be more compassionate for the teachers, you are in every right to be upset at that teacher. How terrible can she be to not give a child the help they need, diagnosis or not. We have had a similar experience with one of our non mito kids. Too make a very long story short, she had behavior problems and my mother walked into her school to find the principal pinning my 5 year old to the floor and telling her that they were going to call the police and lock her up in jail. To make it worse I worked in a maximum security prison at the time, so was very aware how extremely dangerous jail was. Obviously we took her out of that school, and then she was well behaved and did very well. Now she is in a new school, new school year and the problems started again. Her new teacher handled it so well, he is so caring. We finally found out, last week, that the problems she was having is completely related to ADD. You would of thought that a Principal and a teacher (both with there masters in education) would have picked that up 1 1/2 years ago. By saying this, I still stand by what I say about how most of the teachers are into education for the right reasons and we should try to help them, not make there jobs harder. (I am in no way saying you were wrong for doing what was right for your daughter, we need to stand up for our childrens rights, and needs,way to go on that one.) As we all know there are always a few bad apples in the barrel. Best wishes for you and Leanna, I think of your family alot.

[Guest guest]

,

I agree with you 100%. Not all

teachers are caring. By far, I have met more caring ones than not, but one bad

know it all teacher can make your life and your child’e a living hell.

When my daughter,Samya, was taken out of a wonderful private school and put in

public school, it was not a decision we were happy about. She was promised all

the help she needed in special ed but denied any help if continued in private

school. We had no choice, she had many . many needs that private school could

not meet. The main special ed teacher, the one that was supposed to know

disabilities made it her job to make my life a living hell for Samya’s

entire second grade year. I had many IEP’s requesting a one to one aid

for Samya’s many problems. Every single person that worked with Samya

from her teacher to the principal agreed she needed one desperately. Many

children had aids that were much less needy than Samya. The problem was that

she did not have a medical diagnosis, so this WOMAN decided after spending a

very small amount of time with Samya that I was babying her and nothing was

wrong with her. How dare she . She made me fight all year and kept conveniently

stretching it until she got through the year without the help, deteriorated,

was stressed out, got worse with everything from academics to stuttering to

having no friends. GOD help me forgive this woman. I got to the point where I

started seeking a lawyer and was determined that she would have all her needs

met in her 3rd grade year. Now I am simply venting. Well.

Lo and behold, when 3rd grade came along, that WOMAN was no longer

assigned to the school. In her place was a compassionate, caring special aid

administrator. I barged into my appointment with her with a stack of papers in

one hand, letters from doctors, therapists and every person that ever worked

with Samya recommending that she needed a one to one aid, with or without a

DIAGNOSIS. I had an attitude and was ready to FIGHT. This new woman did not

get me once to raise my voice. She spent 10 minutes with Samya and decided she would

do her best to get her that aid. Well, Samya was approved for the help by December,

while she was in the ICU dying. She called me in the ICU to tell me the good news,

and I said, “Thanks anyways, but we won’t be needing that service for

Samya in heaven”. It was a little too late. I felt so bad for her because

she had done her darnest, went out of her way to get this done and she did. That

is the type of person that belongs in that job. The other WOMAN heard about Samya

in the ICU and had the nerve to call and ask about her because she was suddenly

so concerned for my dear daughter. My husband thought I was crazy to have even taken

her call. I told him the guilt she has over not believing Samya had problems

and a serious disorder in enough punishment and I did not have the energy to

direct towards hating her, I had to save it for my dying 8 year old, who never

lived to see that aid in her life. Now, Leanna on the other hand will have an

aid for her first year in public school in September because she has a name to

her disease called MITO.

As if naming the disease a child has makes it worse. Samya had MITO all her life and suffered just like her

sister, but never had the benefits of a diagnosis. I get so angry when I talk

about this. God help me forgive this woman. I wish people that have no compassion

would not choose to work with our children, especially disabled ones . They do more

harm than good. I am sorry for venting, but I had to put in my two

cents and experience.

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: CARRIE CLARK

Sent: Monday, April 26, 2004 10:52

AM

To: mito

Subject: On Teachers response

Hey

everyone

I don't intend to upset anyone here, but not all

teachers are wonderful, caring and hardworking. And I hate to say this,

but I get a little tired of teachers complaining about their pay. Their

pay really is not all that bad, and I guess if they want to complain, find

another job. I have met far more good teachers than bad, but I have come

across one that made things very difficult for 4 months, when I decided I

wasn't going to send Colby to a teacher that did some very off the wall

things. Colby is really not mainstreamed too much anymore. Which is

fine. He is in middle school and he wouldn't get to much out of most of

the classes. I hope I didn't step on any one's toes, and if I did your

welcome to let me have it!

mom to Colby,14,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16,

healthy, Caleb, 11, also healthy

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[Guest guest]

Thanks Suhad

My heart goes out to you. I know how that anger can build in certain situations. The teacher I dealt with, nearly put me in a mental ward. Someone responded that people lump all teachers together, but I think teachers can also lump all parents together. And it seems if they have a problem with a certain child that it is always the parents fault not even thinking that they could also be a part of the situation. I hope everything works out for y

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