Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi, and welcome. My family is not SCD, and I cook for them. I basically keep my food separate. If they put a fork in the rice, for instance, I watch that they do not put that fork in the SDC legal meat. But beyond that, I don't worry about cross contamination, like one would with someone with severe allergies. I make sure my hands are washed, and utensils/ cooking items, etc are clean when I eat, and that's about it. Feel free to post here for any questions. Hope you feel better soon! PJ > > Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. > > So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi, I am a non scd'er and I cook for my husband who is scd with crohns. It is a very individual thing i feel because I dont do anything different with his food except give him scd stuff. He was really sick this time last year, and now he is nearly off all meds, down to 1mg pred per day and that will half if his next bloods come back ok. Others on the list claim to be sick even being in the same room as non scd foods, but I know the drugs can cause paranoia, so I am not going to say wether they are really suffering from a physical or psychological issue but all you can do is start out very carefully and see how it goes. I have noticed that many people seem to be overly cautious and that is fine if they want to live like that, but personally I feel that you have to be realistic and unless you want to live in a bubble, you should only take regular precautions, but that is just my opinion and I am sure there are others here who will totally argue the opposite point. Good luck and I hope you get better jena Husban crohns, diagnosed 12 months ago scd 11 months, minimal meds. Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi , and congratulations for empowering yourself. I hope the SCD works miracles in your life...it certainly did in mine. Back when I was trying to figure out what was wrong with me and right when I was finding BTVC, I spent a lot of time on the celiac webpages, and noticed the huge fear of cross-contamination. After I read BTVC and Elaine's take on celiac, I came to realize the most celiacs are probably overall carbohydrate intolerant, and everytime they think they are getting cross-contaminated, it is more likely a reaction to the other gluten-free but non-SCD compliant carbs they are eating. I speak from experience, because I was gluten-free for roughly three months before I started the SCD, and I, too, thought my food was continually cross-contaminated. Then I figured out that all that gluten-free stuff was making me as sick as the gluten, started SCD, and SHAZAM!! My life changed. That said, I do need to share a story that MAY have been cross-contamination. I was at a friends, and made a cup of hot water (I didn't trust their tea bags). I noticed after drinking it halfway down that there were a bunch of cookie crumbs at the bottom of my tea cup (the plate of cookies was being passed around the table). I allowed myself a moment of paranoia, then forgot about it. Then, 24-hours later, I started to feel exceptionally bad. It lasted a couple of days, and then I went back to just feeling really bad. But I've also been feeling very bad since taking a course of antibiotics for h pylori, and it could well have been the normal variation that all of us feel. Was it cross-contamination? Probably not, considering that I sometimes, when desperately anxious, take a xanax, which isn't SCD legal (I am planning on getting them compounded). But one never knows, and I felt bad enough that I'm certainly going to be very careful in the future. Perhaps when I'm feeling better I can loosen up a bit. Good luck to you, it sounds like you've had a rough time of it. Here's hoping for a full recovery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 , I live in a SAD house and I'm the main cook. I'm like PJ - I keep the rice fork out of the SCD legal meat and keep things clean and don't worry too much about it. Cheers, Stocker CD 1983 SCD 1/2005 Asymptomatic 8/2007 http://eatingSCD.wordpress.com http://youtube.com/eatingSCD > > Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. > > So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Thanks for posting the two articles on gut flora on your blog space. In our lifetime? I hope so, but with research funds provided mainly for pharmaceuticals, who knows? It will be up to people like us to keep looking for article like these. PJ > > > > Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. > > > > So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I'm sure people vary, like with allergies. All I can do is tell you what I do. I have to be gluten free, nightshade free, no red meat or fish, no dairy, no eggs and now SCD. Then there are all the things I am allergic or sensitive to. DH apparently has a stainless steel gut and eats sparingly of whatever he wants so all the above is in the kitchen and being prepared, cooked, and eaten. I even bake for him because I enjoy baking (even if I haven't been able to eat any of it for 35 years). I feel that as long as I keep my food separate, it's fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 >>I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? For people with true celiac any gluten contact is literally poison. Gluten from flour used to bake in a kitchen or restaurant can remain in the air for several hours--making a celiac who breathes it in quite ill.Gluten in cosmetics and in such unexpected places as the adhesive on stamps and envelopes can affect celiacs. It's possible to kiss someone who ate a sandwich without flossing teeth and get " glutened. " However, such reactions are extreme and I'm assuming very rare in someone who may have sensitivity to gluten but not true celiac disease. I'm thinking that anyone who is following a gluten free diet is fine with incidental external contact. It's the presence of gluten molecules in the gut that can pass into the body that are the usual concern. So relax! ShirleyB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I have celiac as do 2 of my sons (1 SCD now) 1 just GF ,and 1 severe peanut /sesame allergy and 1 " normal " diet -plus hubby (who I don't even feed -LOL!! )so yes I live with this scenario and I did go crazy pre-SCD and " gluten-free " the whole kitchen- buy new things etc -having said that- I allow 1 gluten cabinet and 1 freezer shelf and 1 drawer with pots/pans/strainer etc and the gluten folk eat in their " spots " but at the kitchen table, and wash hands after gluten(usually ) but I'm not as anal as I was and it's fine - I do not bake gluten stuff as it wil fly and I spent too long removing it etc -I touch their food ,make them sandwiches etc and all is fine I usually eat here at the computer, but they all sit together, even my scd'r which is probably not fair -but I'm SO afraid of them breathing/sneezing/coughing in my food -but my poor scd'r is sitting with them as he had no symptoms so I feel he's ok??? but anyway if this wacky house can deal with all this different mish-mosh - you'll be fine :-) eileen 21 months scd > > >>I've become so paranoid after reading about cross-contamination online. > The stuff I was reading was for Celiac's, but I figured it pertained to > any gluten-free diet. Am I being too paranoid? Does anyone else live > with and cook for non-SCDers and how do you keep things separate? > > For people with true celiac any gluten contact is literally poison. Gluten from flour used to bake in a kitchen or restaurant can remain in the air for several hours--making a celiac who breathes it in quite ill.Gluten in cosmetics and in such unexpected places as the adhesive on stamps and envelopes can affect celiacs. It's possible to kiss someone who ate a sandwich without flossing teeth and get " glutened. " > > However, such reactions are extreme and I'm assuming very rare in someone who may have sensitivity to gluten but not true celiac disease. > > I'm thinking that anyone who is following a gluten free diet is fine with incidental external contact. It's the presence of gluten molecules in the gut that can pass into the body that are the usual concern. > > So relax! > > ShirleyB > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Here's my 2 cents :-). I'm the only SCD person in my house. The only precaution I've taken is to have my own stick of butter, because my dad gets toast crumbs all over the " family " butter. I'm sure I get traces of illegals, like when I didn't realize there was a dusting of spelt flour on the counter until AFTER I had laid down saran wrap to wrap some SCD food. I also just realized (only took a year ;-)) that when I share food with my bird (she likes to take a bite or drink of what I'm having), it's quite possible she has gluten crumbs on her beak. However, I seem no worse the wear from these trace contaminations. I'm not going to stress about it, because I can't do anything about my SAD parents spreading gluten around THERE house :-). And the bird, well, it's worth the risk to make her feel part of the family. Plus, when she leans towards me for her goodnight kiss, I could hardly just walk away. Holly Crohn's SCD 12/01/08 > > Hello everyone. I guess I should re-introduce myself. This is my second attempt at this diet- I was a member of this group back in February. I've had Crohn's for 15 years. I had my second bowel resection last May, have had reactions to Remicade and Humira, and Cimzia did nothing for me. Imuran and 6mp do nothing but make my hair fall out. I've been on and off prednisone all 15 years, and am currently on 20mg/day. The last GI doc I saw said I was " steroid dependent " . He also told me he would have no part of my treatment if prednisone was the only drug that worked for me. So I basically have no doctor right now and don't know how I'm going to get myself off the stuff. Anyway- I've been on the diet for 2 1/2 weeks and am starting to feel somewhat better. I am totally committed this time as I know I have no other choice. > > So here's my question- I have three small non-SCD children. They snack on things like organic cereals, cookies, crackers etc. in bowls in the living room. They then proceed to touch EVERYTHING in the house, including the kitchen, with their gluten-covered hands. They also eat sandwiches, pasta etc. which I fix for them. I've become so paranoid after reading about cross-contamination online. The stuff I was reading was for Celiac's, but I figured it pertained to any gluten-free diet. Am I being too paranoid? Does anyone else live with and cook for non-SCDers and how do you keep things separate? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.