Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 's neurologist told me last week that she spoke with Dr. Cohen and he has established new guidelines for seeing patients. Any NEW pt he sees for mito will be for daignoses only we never saw Cohen but I think this is going to be devestating for Mitochondrial medicine. The PCPs have no training in mitochondrial medicine and no idea what they are doing...I hope she misunderstood or something and would love to know if anyone hears the same or different when they call. Glad you guys are locked in, so to speak... deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comwww.LifeofLoveProject.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 's neurologist told me last week that she spoke with Dr. Cohen and he has established new guidelines for seeing patients. Any NEW pt he sees for mito will be for daignoses only. He will not follow them. He is putting the care back into the PCP lap. I believe that he will continue to follow up with established patients. I just wanted to let anyone who is considering going to him as a new pt. know this. You may want to call and ask his nurse for verification, but 's doc said he told her directly! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hey guys! Just wanted to let you know that I talked to Lyn in Dr. Cohen's office a few minutes ago and he is NOT doing any followup care for new patients. He will consult with your PCP after seeing you but that will be it. We were on the list to see him but we were after the long term followup care so this puts us out and looking for another Dr. in the south.....anyone have suggestions? By the way were were # 60 on the waiting list so he is swamped! Blessings, Horsley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 They told us this week that he won't see any patients for follow up. He will just be seeing people for diagnosis. There are supposed to be some new docs coming into the practice and they may see people for follow-up. Quote Link to comment Share on other sites More sharing options...
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