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Mayo update for Asenath

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Well, this day has been quite long already and it is only 10 AM! We went to

our scheduled 7 AM appointment only to be told it was cancelled due to a

URINARY TRACT INFECTION with two different types of bacteria found. It

makes me wonder how many times this has happened to her before. Her only

symptoms we have saw was that nasty smell we were talking about recently.

It has been continuing for quite some time now!!! So, the testing will

probably be done tomorrow after being on antibiotics for 24 hours. Sad

thing about this mornign was we had so little sleep and were told last

evening that they would call us so we wouldn't need to come in if there was

a complication such as a urinary infection. They knew where we were and

just didn't bother calling!!! Most importantly however, is the fact that

Asenath obviously has been having urinary problems for a long time and noone

has thought it necessary to see a urologist until I told Dr. Whiteman just

how MUCH she was putting out at night. (While dehydrated she put out

300-400 cc-and that was a very light diaper!) She has had issues probably

due to her strokes for quite a while but I think the docs were so

preoccupied by the other issues, especially the artery issues, so they

overlooked this area. At least her kidneys look good at this point so

hopefully there isn't much wrong. Prayers appreciated!

By the way, thanks for all the responses. And to those of you who have

written asking questions, I will try to answer them as soon as I can. I

just got through reading 105-110 e-mails so am a little tired at this point.

Maybe respond within a few days. :)

Darla: mommy to:

Asenath (4) Mito, brain vasculitis, strokes, migraines, seizures, g-tube,

disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use,

asthma...

Zipporrah,(5 mon.)Mito, strokes, sensory issues, feeding/breathing issues...

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