Re: Dr.Cohen and new patients/great nuero in Orlando ...

[Guest guest]

This doesn't surprise me. We saw Dr. @ Kennedy-Krieger in

Baltimore and he doesn't do in-clinic follow ups either. However, he

does consult with us by phone/e-mail and is always available to us.

The sad fact is, Abbey's other doctor's don't know a lot about this

disorder but in our case there isn't anything else we can do to help

Abbey so even if we saw Dr. everyday it wouldn't make a

difference. We lived in Orlando for 2 years and a ped.nuerologist by

the name of Dr. diagnosed Abbey and referred us to a

specialist. He is wonderful and I miss having him to consult

tremendously! He knows a lot about mito and has several patients with

it. If any one lives close I recommend him highly to oversee progress.

> 's neurologist told me last week that she spoke with Dr. Cohen

> and he has established new guidelines for seeing patients. Any NEW

> pt he sees for mito will be for daignoses only. He will not follow

> them. He is putting the care back into the PCP lap. I believe that

> he will continue to follow up with established patients. I just

> wanted to let anyone who is considering going to him as a new pt.

> know this. You may want to call and ask his nurse for verification,

> but 's doc said he told her directly!

>

> Dawn

[Guest guest]

,

Please tell me how to reach your great neuro in Orlando. I'd like to keep that info on hand. We live in Boca Raton and I think I've found a neuro I like in Miami, but I'm not completely sure about him yet.

Anne R

[Guest guest]

Anne,

We live in Englewood, FL. We see Dr Douchowny at Miami Children's Hospital but I was given Dr from a previous doctor in Boston. He is in Orlando although we never had a visit w/ him.

Heidi

[Guest guest]

,

I would like the contact info of your Dr.

Thanks,

Horsley

leehorsley@...

Re: Re: Dr.Cohen and new patients/great nuero in Orlando ...

,Please tell me how to reach your great neuro in Orlando. I'd like to keep that info on hand. We live in Boca Raton and I think I've found a neuro I like in Miami, but I'm not completely sure about him yet.Anne R Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.

[Guest guest]

Hello Anne,

my name is and we also live in Florida. In Melbourne actually it's an hour away from Orlando. My daughters neuro is here in town and he is great with mito he did his residency in Atlanta and worked directly with Dr Schoffner. He is really great with mito and the kids. And I am also vice president of a mito support group here also so if you would like any info. Please feel free to email me .

Re: Re: Dr.Cohen and new patients/great nuero in Orlando ...

,Please tell me how to reach your great neuro in Orlando. I'd like to keep that info on hand. We live in Boca Raton and I think I've found a neuro I like in Miami, but I'm not completely sure about him yet.Anne R Please contact mito-owner with any problems or questions.